13 patient evaluations for Carbidopa Levodopa ER

Dec 26, 2018 (Started Aug 15, 2018)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Severe (reactive depression)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 4 x 23.75-95 mg Five times daily
Advice & Tips: Too Rytary exactly as prescribed by my MDS At forst it wored aonders to ease the stiffness and rigidity Ihad in my shoulders and hips Unfortunately within a month I was sliding into depression and did not realize it until later. The worst four months of my life
Cost: $200+ monthly

  • 0 helpful marks

Jun 28, 2018 (Started Apr 05, 2016)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (nausea)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 3 capsule(s) Four times daily
Advice & Tips: I do not enjoy playing guessing games about the meds I need based on family stressors
Cost: $50-99 monthly

May 22, 2018 (Started Apr 05, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Moderate (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 capsule(s) Four times daily
Advice & Tips: This is frustrating medicine. I have to be extremely cautious with this medication regarding time. if you are hoping you will have up to 90 min to wait. I have going off med dyskinesia and with Rytary driving the train it creates a violent ,exhausting dyskinesia
Cost: $50-99 monthly

May 5, 2017 (Started Apr 05, 2016)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 capsule(s) Four times daily
Advice & Tips: I like feeling as normal as possible. and my meds make it posssible/
Cost: $50-99 monthly

Oct 22, 2016 (Started Apr 05, 2016)

  • Effectiveness
    Moderate (for Parkinson's disease)
  • Side effects
    Mild (nausea)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 3 x 23.75-95 mg Daily
Advice & Tips: it takes a while to work into the system and my muscles are more loose and supple while it is "on"
Cost: $50-99 monthly

  • 0 helpful marks

Jun 6, 2018 (Started Jul 31, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 48.75-195 mg Four times daily
Advice & Tips: I have now found that I can get out of bed and walk better if the Ryatry is "working". I would not say it "kicks in". It is more like the effect slowly works it's way into my brain. dosage: 1 48.75-195 mg dose eveery 4 hours 4:30am, 8:30am, 12:30pm, 4:30pm
Cost: < $25 monthly

Sep 30, 2017 (Started Jul 31, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 48.75-195 mg Four times daily
Advice & Tips: My dose schedule is 1 capsule very four hours. 6am 10am 2pm 6pm IT seems I need at least 2-4 hrs in my system before I get out of bed. I can get tremors after 9pm, but the additional modafinil and cymbalta could be part of it. Also, my neurologist noted dyskenesia at my yearly visit (8/30/17). We tried bumping down from 195 mg to 145 mg in case I developed more sensitivity, hence needing less. Nope, after about 6 days I returnd to the 195 mg dose.
Cost: < $25 monthly

Mar 6, 2017 (Started Jul 31, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    Not at all hard to take
Dosage: 48.75-195 mg Four times daily
Advice & Tips: I am happy with the effectiveness with Rytary compared to Sinemet. I tried 4x a day, but i got wiggly in the evening. Yet, if I had to be out and about in the evening, I would take the 4th dose. I wonder if I'm more wakeful with Rytary and need less modafinil?
Cost: < $25 monthly

Sep 23, 2016 (Started Jul 31, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 48.75-195 mg Four times daily
Advice & Tips: I noticed a lack of effectiveness in early August. Neurologist said to add one 25/100 carbidopa/levadopa to the the 36.25/145 mg Rytary dose. After couple weeks it seemed to be enough. At that point I started one dose 48.75-195 mg four times daily. It is acceptable. I take it every 4 hours , starting at 6am. Sometimes I don't take the 6pm dose.
Cost: < $25 monthly

Jul 21, 2016 (Started Jul 31, 2015)

  • Effectiveness
    Major (for Parkinson's disease)
  • Side effects
    Mild (jerky movements)
  • Adherence
    Always
  • Burden
    A little hard to take
Dosage: 36.25-145 mg Four times daily
Advice & Tips: Rytary has smoothed out the peaks and valleys. It took about 6 weeks of futzing with the timing. I was pleasantly surprised. It makes it easier to predict the days outings I'm able to trust my body. Note: my insurance is a HDHP so my cost varies from 100% of negotiated cost, to 20%, to 0%.
Cost: $25-49 monthly

  • 3 helpful marks
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Showing 3 of 13 patient evaluations for Carbidopa Levodopa ER