Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
565
Tried for
Parkinson's disease (561) stiffness/spasticity (5)
4 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
146
Tried for
Parkinson's disease (141) jerky movements (6)
2 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
145
Tried for
Parkinson's disease (145) tremor(s) (2)
1 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
123
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
118
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
96
Tried for
Parkinson's disease (96) stiffness/spasticity (1)
1 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
66
Tried for
Parkinson's disease (66)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
65
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
50
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
45
Tried for
Parkinson's disease (43) jerky movements (7)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (512 evaluations)
Side effects
nausea jerky movements 122 more
Total evaluations
524
Tried for
Parkinson's disease (561) stiffness/spasticity (5)
4 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (121 evaluations)
Side effects
dry mouth constipation 50 more
Total evaluations
126
Tried for
Parkinson's disease (141) jerky movements (6)
2 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (114 evaluations)
Side effects
constant tiredness daytime sleepiness 30 more
Total evaluations
117
Tried for
Parkinson's disease (145) tremor(s) (2)
1 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (78 evaluations)
Side effects
nausea dizziness 35 more
Total evaluations
79
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (154 evaluations)
Side effects
jerky movements nausea 53 more
Total evaluations
154
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (78 evaluations)
Side effects
sleepiness drowsiness 38 more
Total evaluations
78
Tried for
Parkinson's disease (96) stiffness/spasticity (1)
1 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (38 evaluations)
Side effects
diarrhea nausea 17 more
Total evaluations
38
Tried for
Parkinson's disease (66)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (59 evaluations)
Side effects
nausea daytime sleepiness 24 more
Total evaluations
60
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
insomnia nausea 18 more
Total evaluations
46
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (31 evaluations)
Side effects
Hospitalization balance problems 12 more
Total evaluations
32
Tried for
Parkinson's disease (43) jerky movements (7)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 66
30s 244
40s 937
50s 3413
60s 7612
70+ 9674
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 244
30-39 years 830
40-49 years 1855
50-59 years 2661
60-69 years 1957
70+ years 597

Distribution of sex

Sex
Sex Proportion # of patients
Male 11517
Female 10795

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 199
Parkinsonism of unknown cause 3710
Parkinson's disease 13074
Parkinson's disease of inherited (genetic) origin 1435
Vascular parkinsonism 97
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9512
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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