Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
553
Tried for
Parkinson's disease (549) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
142
Tried for
Parkinson's disease (137) jerky movements (6)
2 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
141
Tried for
Parkinson's disease (141) stiffness/spasticity (1)
1 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
117
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
116
Tried for
Parkinson's disease (116) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
92
Tried for
Parkinson's disease (92) tremor(s) (1)
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
65
Tried for
Parkinson's disease (65)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
64
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
50
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
46
Tried for
Parkinson's disease (45) jerky movements (6)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (502 evaluations)
Side effects
nausea jerky movements 125 more
Total evaluations
514
Tried for
Parkinson's disease (549) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (116 evaluations)
Side effects
dry mouth constipation 50 more
Total evaluations
121
Tried for
Parkinson's disease (137) jerky movements (6)
2 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (111 evaluations)
Side effects
constant tiredness daytime sleepiness 30 more
Total evaluations
114
Tried for
Parkinson's disease (141) stiffness/spasticity (1)
1 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (72 evaluations)
Side effects
nausea excessive daytime sleepiness (somnolence) 35 more
Total evaluations
73
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (154 evaluations)
Side effects
jerky movements nausea 52 more
Total evaluations
154
Tried for
Parkinson's disease (116) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (53 evaluations)
Side effects
sleepiness excessive daytime sleepiness (somnolence) 34 more
Total evaluations
53
Tried for
Parkinson's disease (92) tremor(s) (1)
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (37 evaluations)
Side effects
nausea diarrhea 11 more
Total evaluations
37
Tried for
Parkinson's disease (65)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (57 evaluations)
Side effects
nausea daytime sleepiness 23 more
Total evaluations
58
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
insomnia nausea 18 more
Total evaluations
47
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (34 evaluations)
Side effects
Hospitalization balance problems 12 more
Total evaluations
35
Tried for
Parkinson's disease (45) jerky movements (6)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 66
30s 244
40s 931
50s 3377
60s 7584
70+ 9774
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 244
30-39 years 831
40-49 years 1856
50-59 years 2662
60-69 years 1957
70+ years 598

Distribution of sex

Sex
Sex Proportion # of patients
Male 11526
Female 10815

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 199
Parkinsonism of unknown cause 3712
Parkinson's disease 13079
Parkinson's disease of inherited (genetic) origin 1437
Vascular parkinsonism 97
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9516
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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