Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
718
Tried for
Parkinson's disease (715) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
212
Tried for
Parkinson's disease (211) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
195
Tried for
Parkinson's disease (191) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
169
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
139
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
125
Tried for
Parkinson's disease (124) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
90
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
75
Tried for
Parkinson's disease (75)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
74
Tried for
Parkinson's disease (72) jerky movements (9)
3 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
69

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (659 evaluations)
Side effects
nausea jerky movements 144 more
Total evaluations
670
Tried for
Parkinson's disease (715) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (185 evaluations)
Side effects
headaches jerky movements 39 more
Total evaluations
189
Tried for
Parkinson's disease (211) tremor(s) (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (158 evaluations)
Side effects
dry mouth fatigue 54 more
Total evaluations
166
Tried for
Parkinson's disease (191) jerky movements (6)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (124 evaluations)
Side effects
nausea tiredness 54 more
Total evaluations
126
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (112 evaluations)
Side effects
drowsiness sleepiness 54 more
Total evaluations
113
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (155 evaluations)
Side effects
jerky movements nausea 55 more
Total evaluations
157
Tried for
Parkinson's disease (124) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (82 evaluations)
Side effects
nausea daytime sleepiness 35 more
Total evaluations
83
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
diarrhea nausea 18 more
Total evaluations
48
Tried for
Parkinson's disease (75)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
Hospitalization balance problems 21 more
Total evaluations
53
Tried for
Parkinson's disease (72) jerky movements (9)
3 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea insomnia 20 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 67
30s 258
40s 1043
50s 3508
60s 7377
70+ 8286
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 833
40-49 years 1860
50-59 years 2664
60-69 years 1951
70+ years 590

Distribution of sex

Sex
Sex Proportion # of patients
Male 10789
Female 10082

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 190
Parkinsonism of unknown cause 3517
Parkinson's disease 12480
Parkinson's disease of inherited (genetic) origin 1384
Vascular parkinsonism 92
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9501
Not Diagnosed 312

These charts show data from Parkinson's disease patients who have completed their condition history
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