Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
576
Tried for
Parkinson's disease (573) stiffness/spasticity (5)
5 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
152
Tried for
Parkinson's disease (152) tremor(s) (2)
1 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
148
Tried for
Parkinson's disease (143) jerky movements (6)
2 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
133
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
118
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
102
Tried for
Parkinson's disease (102) stiffness/spasticity (1)
1 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
68
Tried for
Parkinson's disease (68)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
68
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
50
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
49
Tried for
Parkinson's disease (47) jerky movements (7)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (514 evaluations)
Side effects
nausea jerky movements 125 more
Total evaluations
526
Tried for
Parkinson's disease (573) stiffness/spasticity (5)
5 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (120 evaluations)
Side effects
constant tiredness daytime sleepiness 32 more
Total evaluations
123
Tried for
Parkinson's disease (152) tremor(s) (2)
1 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (124 evaluations)
Side effects
dry mouth constipation 50 more
Total evaluations
129
Tried for
Parkinson's disease (143) jerky movements (6)
2 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (90 evaluations)
Side effects
nausea dizziness 40 more
Total evaluations
91
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (154 evaluations)
Side effects
jerky movements nausea 52 more
Total evaluations
154
Tried for
Parkinson's disease (118) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (84 evaluations)
Side effects
sleepiness drowsiness 38 more
Total evaluations
84
Tried for
Parkinson's disease (102) stiffness/spasticity (1)
1 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (42 evaluations)
Side effects
diarrhea nausea 17 more
Total evaluations
42
Tried for
Parkinson's disease (68)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (62 evaluations)
Side effects
nausea daytime sleepiness 27 more
Total evaluations
63
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
insomnia nausea 18 more
Total evaluations
46
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (33 evaluations)
Side effects
Hospitalization balance problems 14 more
Total evaluations
34
Tried for
Parkinson's disease (47) jerky movements (7)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 63
30s 246
40s 933
50s 3331
60s 7347
70+ 9318
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 71
20-29 years 244
30-39 years 830
40-49 years 1855
50-59 years 2656
60-69 years 1948
70+ years 593

Distribution of sex

Sex
Sex Proportion # of patients
Male 11175
Female 10417

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 194
Parkinsonism of unknown cause 3607
Parkinson's disease 12731
Parkinson's disease of inherited (genetic) origin 1404
Vascular parkinsonism 94
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9485
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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