Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
15294
Tried for
Parkinson's disease (166)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
4780
Tried for
Parkinson's disease (46)
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
5080
Tried for
Parkinson's disease (26)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
4554
Tried for
Parkinson's disease (24)
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
5023
Tried for
Parkinson's disease (21)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
1748
Tried for
Parkinson's disease (16)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
3084
Tried for
Parkinson's disease (14)
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
1953
Tried for
Parkinson's disease (10)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
1816
Tried for
Parkinson's disease (10)
Treatment name(s)

(Emsam)
Type
Prescription Drug
How many have tried
1946
Tried for
Parkinson's disease (7)

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (133 evaluations)
Side effects
nausea constipation 40 more
Total evaluations
133
Tried for
Parkinson's disease (166)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (29 evaluations)
Side effects
constipation dry mouth 10 more
Total evaluations
30
Tried for
Parkinson's disease (46)
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (24 evaluations)
Side effects
sleepiness balance problems 13 more
Total evaluations
24
Tried for
Parkinson's disease (26)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (15 evaluations)
Side effects
nausea dizziness 3 more
Total evaluations
15
Tried for
Parkinson's disease (24)
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (17 evaluations)
Side effects
cognitive impairment hallucinations 2 more
Total evaluations
17
Tried for
Parkinson's disease (21)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (14 evaluations)
Side effects
Hospitalization fatigue 6 more
Total evaluations
14
Tried for
Parkinson's disease (16)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (11 evaluations)
Side effects
nausea blurry vision 6 more
Total evaluations
11
Tried for
Parkinson's disease (14)
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (5 evaluations)
Side effects
dyskinesia (jerky movements without tremors) sleepiness 1 more
Total evaluations
5
Tried for
Parkinson's disease (10)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (6 evaluations)
Side effects
Total evaluations
6
Tried for
Parkinson's disease (10)
Treatment name(s)

(Emsam)
Perceived effectiveness
for Parkinson's disease (1 evaluation)
Side effects
rashes (redness, swelling)
Total evaluations
1
Tried for
Parkinson's disease (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?

  • 19 new patients joined this month
  • 29394 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 11
20s 62
30s 219
40s 682
50s 2878
60s 7405
70+ 13574
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 238
30-39 years 831
40-49 years 1856
50-59 years 2681
60-69 years 1985
70+ years 614

Distribution of sex

Sex
Sex Proportion # of patients
Male 12905
Female 12321

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 229
Parkinsonism of unknown cause 4127
Parkinson's disease 14161
Parkinson's disease of inherited (genetic) origin 1550
Vascular parkinsonism 104
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9592
Not Diagnosed 309

These charts show data from Parkinson's disease patients who have completed their condition history
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