Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
14394
Tried for
Parkinson's disease (401)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
4584
Tried for
Parkinson's disease (105)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
4396
Tried for
Parkinson's disease (82)
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
4853
Tried for
Parkinson's disease (81)
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
4928
Tried for
Parkinson's disease (62)
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
1884
Tried for
Parkinson's disease (41)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
1759
Tried for
Parkinson's disease (38)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
2938
Tried for
Parkinson's disease (36)
Treatment name(s)

(Emsam)
Type
Prescription Drug
How many have tried
1887
Tried for
Parkinson's disease (27)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
1681
Tried for
Parkinson's disease (26)

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (393 evaluations)
Side effects
nausea constipation 97 more
Total evaluations
396
Tried for
Parkinson's disease (401)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (84 evaluations)
Side effects
constipation dry mouth 36 more
Total evaluations
85
Tried for
Parkinson's disease (105)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (58 evaluations)
Side effects
nausea tiredness 29 more
Total evaluations
59
Tried for
Parkinson's disease (82)
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (70 evaluations)
Side effects
cognitive impairment confusion 21 more
Total evaluations
71
Tried for
Parkinson's disease (81)
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (42 evaluations)
Side effects
sleepiness dizziness and feeling faint 30 more
Total evaluations
42
Tried for
Parkinson's disease (62)
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (23 evaluations)
Side effects
diarrhea nausea 8 more
Total evaluations
23
Tried for
Parkinson's disease (41)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
nausea rashes (redness, swelling) 12 more
Total evaluations
42
Tried for
Parkinson's disease (38)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (33 evaluations)
Side effects
nausea abnormal urine color 17 more
Total evaluations
33
Tried for
Parkinson's disease (36)
Treatment name(s)

(Emsam)
Perceived effectiveness
for Parkinson's disease (12 evaluations)
Side effects
nausea dizziness 4 more
Total evaluations
12
Tried for
Parkinson's disease (27)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (24 evaluations)
Side effects
Hospitalization balance problems 8 more
Total evaluations
24
Tried for
Parkinson's disease (26)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?

  • 143 new patients joined this month
  • 27418 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 7
20s 61
30s 254
40s 825
50s 3330
60s 7672
70+ 11097
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 245
30-39 years 833
40-49 years 1858
50-59 years 2668
60-69 years 1963
70+ years 600

Distribution of sex

Sex
Sex Proportion # of patients
Male 12111
Female 11511

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 214
Parkinsonism of unknown cause 3894
Parkinson's disease 13588
Parkinson's disease of inherited (genetic) origin 1492
Vascular parkinsonism 100
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9543
Not Diagnosed 314

These charts show data from Parkinson's disease patients who have completed their condition history
Last updated: