Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
452
Tried for
Parkinson's disease (447) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
117
Tried for
Parkinson's disease (113) jerky movements (5)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
94
Tried for
Parkinson's disease (94) tremor(s) (1)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
88
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
79
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
70
Tried for
Parkinson's disease (70)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
44
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
43
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
43
Tried for
Parkinson's disease (43)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
32
Tried for
Parkinson's disease (31) jerky movements (4)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (441 evaluations)
Side effects
nausea jerky movements 111 more
Total evaluations
456
Tried for
Parkinson's disease (447) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (95 evaluations)
Side effects
dry mouth blurry vision 36 more
Total evaluations
100
Tried for
Parkinson's disease (113) jerky movements (5)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (87 evaluations)
Side effects
cognitive impairment confusion 23 more
Total evaluations
88
Tried for
Parkinson's disease (94) tremor(s) (1)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (60 evaluations)
Side effects
nausea tiredness 30 more
Total evaluations
61
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (92 evaluations)
Side effects
jerky movements constipation 41 more
Total evaluations
92
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (44 evaluations)
Side effects
sleepiness dizziness and feeling faint 31 more
Total evaluations
44
Tried for
Parkinson's disease (70)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea daytime sleepiness 15 more
Total evaluations
48
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (42 evaluations)
Side effects
nausea insomnia 20 more
Total evaluations
47
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (25 evaluations)
Side effects
diarrhea nausea 9 more
Total evaluations
25
Tried for
Parkinson's disease (43)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (27 evaluations)
Side effects
Hospitalization balance problems 8 more
Total evaluations
28
Tried for
Parkinson's disease (31) jerky movements (4)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?

  • 47 new patients joined this month
  • 27073 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 7
20s 60
30s 248
40s 858
50s 3369
60s 7710
70+ 10757
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 245
30-39 years 831
40-49 years 1859
50-59 years 2668
60-69 years 1961
70+ years 601

Distribution of sex

Sex
Sex Proportion # of patients
Male 12012
Female 11370

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 213
Parkinsonism of unknown cause 3855
Parkinson's disease 13520
Parkinson's disease of inherited (genetic) origin 1483
Vascular parkinsonism 99
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9540
Not Diagnosed 313

These charts show data from Parkinson's disease patients who have completed their condition history
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