Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.



Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
15,282
Tried for
Parkinson's disease (89)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
4,778
Tried for
Parkinson's disease (25)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
1,747
Tried for
Parkinson's disease (15)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
4,550
Tried for
Parkinson's disease (13)
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
5,079
Tried for
Parkinson's disease (13)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
3,086
Tried for
Parkinson's disease (9)
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
5,020
Tried for
Parkinson's disease (9)
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
1,955
Tried for
Parkinson's disease (6)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
1,816
Tried for
Parkinson's disease (4)
Treatment name(s)

(Emsam)
Type
Prescription Drug
How many have tried
1,945
Tried for
Parkinson's disease (3)

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (74 evaluations)
Side effects
nausea lightheadedness 18 more
Total evaluations
74
Tried for
Parkinson's disease (89)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (19 evaluations)
Side effects
constipation dizziness with hypotension upon standing 4 more
Total evaluations
20
Tried for
Parkinson's disease (25)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (12 evaluations)
Side effects
fatigue Hospitalization 5 more
Total evaluations
12
Tried for
Parkinson's disease (15)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (11 evaluations)
Side effects
nausea dizziness 1 more
Total evaluations
11
Tried for
Parkinson's disease (13)
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (10 evaluations)
Side effects
difficulty sleeping increased need for sleep 1 more
Total evaluations
10
Tried for
Parkinson's disease (13)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (4 evaluations)
Side effects
brain fog fatigue 1 more
Total evaluations
4
Tried for
Parkinson's disease (9)
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (8 evaluations)
Side effects
hallucinations high blood pressure (hypertension)
Total evaluations
8
Tried for
Parkinson's disease (9)
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (2 evaluations)
Side effects
Total evaluations
2
Tried for
Parkinson's disease (6)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (3 evaluations)
Side effects
Total evaluations
3
Tried for
Parkinson's disease (4)
Treatment name(s)

(Emsam)
Perceived effectiveness
for Parkinson's disease (1 evaluation)
Side effects
rashes (redness, swelling)
Total evaluations
1
Tried for
Parkinson's disease (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?

  • 12 new patients joined this month
  • 29,527 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 11
20s 53
30s 223
40s 614
50s 2,627
60s 7,027
70+ 14,430
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 69
20-29 years 238
30-39 years 830
40-49 years 1,856
50-59 years 2,679
60-69 years 1,985
70+ years 615

Distribution of sex

Sex
Sex Proportion # of patients
Male 12,971
Female 12,375

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 229
Parkinsonism of unknown cause 4,128
Parkinson's disease 14,157
Parkinson's disease of inherited (genetic) origin 1,550
Vascular parkinsonism 104
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9,592
Not Diagnosed 309

These charts show data from Parkinson's disease patients who have completed their condition history
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