Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
692
Tried for
Parkinson's disease (688) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
197
Tried for
Parkinson's disease (197) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
186
Tried for
Parkinson's disease (181) jerky movements (5)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
163
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
130
Tried for
Parkinson's disease (130) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
126
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
80
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
74
Tried for
Parkinson's disease (74)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
62
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
57
Tried for
Parkinson's disease (55) jerky movements (7)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (630 evaluations)
Side effects
nausea jerky movements 144 more
Total evaluations
642
Tried for
Parkinson's disease (688) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (165 evaluations)
Side effects
headaches jerky movements 37 more
Total evaluations
168
Tried for
Parkinson's disease (197) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (151 evaluations)
Side effects
dry mouth fatigue 53 more
Total evaluations
156
Tried for
Parkinson's disease (181) jerky movements (5)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (119 evaluations)
Side effects
nausea tiredness 51 more
Total evaluations
122
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (103 evaluations)
Side effects
sleepiness drowsiness 52 more
Total evaluations
103
Tried for
Parkinson's disease (130) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (156 evaluations)
Side effects
jerky movements nausea 55 more
Total evaluations
158
Tried for
Parkinson's disease (125) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (72 evaluations)
Side effects
nausea compulsive shopping or spending 31 more
Total evaluations
73
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (49 evaluations)
Side effects
diarrhea nausea 19 more
Total evaluations
49
Tried for
Parkinson's disease (74)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (43 evaluations)
Side effects
insomnia nausea 19 more
Total evaluations
48
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (40 evaluations)
Side effects
Hospitalization balance problems 17 more
Total evaluations
41
Tried for
Parkinson's disease (55) jerky movements (7)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 68
30s 248
40s 1015
50s 3483
60s 7434
70+ 8864
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 833
40-49 years 1859
50-59 years 2663
60-69 years 1953
70+ years 592

Distribution of sex

Sex
Sex Proportion # of patients
Male 11113
Female 10350

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 193
Parkinsonism of unknown cause 3595
Parkinson's disease 12679
Parkinson's disease of inherited (genetic) origin 1402
Vascular parkinsonism 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9511
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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