Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
729
Tried for
Parkinson's disease (726) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
219
Tried for
Parkinson's disease (218) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
200
Tried for
Parkinson's disease (196) jerky movements (7)
3 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
171
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
139
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
122
Tried for
Parkinson's disease (121) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
93
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
78
Tried for
Parkinson's disease (76) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
76
Tried for
Parkinson's disease (76)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
71

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (664 evaluations)
Side effects
nausea jerky movements 147 more
Total evaluations
675
Tried for
Parkinson's disease (726) stiffness/spasticity (7)
4 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (191 evaluations)
Side effects
headaches jerky movements 42 more
Total evaluations
195
Tried for
Parkinson's disease (218) stiffness/spasticity (3)
2 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (167 evaluations)
Side effects
dry mouth fatigue 54 more
Total evaluations
175
Tried for
Parkinson's disease (196) jerky movements (7)
3 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (123 evaluations)
Side effects
nausea tiredness 55 more
Total evaluations
125
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (116 evaluations)
Side effects
drowsiness sleepiness 57 more
Total evaluations
117
Tried for
Parkinson's disease (139) stiffness/spasticity (1)
1 more
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (162 evaluations)
Side effects
jerky movements nausea 54 more
Total evaluations
163
Tried for
Parkinson's disease (121) stiffness/spasticity (8)
2 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (83 evaluations)
Side effects
nausea daytime sleepiness 37 more
Total evaluations
84
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (53 evaluations)
Side effects
Hospitalization balance problems 21 more
Total evaluations
54
Tried for
Parkinson's disease (76) jerky movements (9)
4 more
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
diarrhea nausea 18 more
Total evaluations
48
Tried for
Parkinson's disease (76)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (47 evaluations)
Side effects
nausea insomnia 21 more
Total evaluations
51
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 65
30s 260
40s 1017
50s 3450
60s 7183
70+ 8039
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 245
30-39 years 832
40-49 years 1858
50-59 years 2662
60-69 years 1945
70+ years 590

Distribution of sex

Sex
Sex Proportion # of patients
Male 10479
Female 9862

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 186
Parkinsonism of unknown cause 3437
Parkinson's disease 12185
Parkinson's disease of inherited (genetic) origin 1355
Vascular parkinsonism 90
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9485
Not Diagnosed 310

These charts show data from Parkinson's disease patients who have completed their condition history
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