Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
616
Tried for
Parkinson's disease (612) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
173
Tried for
Parkinson's disease (173) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
162
Tried for
Parkinson's disease (157) jerky movements (5)
2 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
144
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
119
Tried for
Parkinson's disease (119) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
107
Tried for
Parkinson's disease (107) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
72
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
68
Tried for
Parkinson's disease (68)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
56
Tried for
Parkinson's disease (54) jerky movements (7)
3 more
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
55

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (557 evaluations)
Side effects
nausea jerky movements 132 more
Total evaluations
569
Tried for
Parkinson's disease (612) stiffness/spasticity (6)
5 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (146 evaluations)
Side effects
headaches jerky movements 36 more
Total evaluations
149
Tried for
Parkinson's disease (173) tremor(s) (3)
1 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (140 evaluations)
Side effects
dry mouth fatigue 51 more
Total evaluations
145
Tried for
Parkinson's disease (157) jerky movements (5)
2 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (107 evaluations)
Side effects
nausea tiredness 46 more
Total evaluations
110
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (153 evaluations)
Side effects
jerky movements nausea 52 more
Total evaluations
153
Tried for
Parkinson's disease (119) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (92 evaluations)
Side effects
sleepiness drowsiness 41 more
Total evaluations
92
Tried for
Parkinson's disease (107) stiffness/spasticity (1)
1 more
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (69 evaluations)
Side effects
nausea daytime sleepiness 30 more
Total evaluations
70
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (44 evaluations)
Side effects
diarrhea nausea 17 more
Total evaluations
44
Tried for
Parkinson's disease (68)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (39 evaluations)
Side effects
Hospitalization balance problems 16 more
Total evaluations
40
Tried for
Parkinson's disease (54) jerky movements (7)
3 more
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (43 evaluations)
Side effects
insomnia nausea 19 more
Total evaluations
48
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 5
20s 66
30s 247
40s 984
50s 3409
60s 7403
70+ 9011
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 70
20-29 years 244
30-39 years 831
40-49 years 1857
50-59 years 2655
60-69 years 1945
70+ years 593

Distribution of sex

Sex
Sex Proportion # of patients
Male 11126
Female 10346

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 193
Parkinsonism of unknown cause 3600
Parkinson's disease 12692
Parkinson's disease of inherited (genetic) origin 1403
Vascular parkinsonism 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9484
Not Diagnosed 310

These charts show data from Parkinson's disease patients who have completed their condition history
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