Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
14522
Tried for
Parkinson's disease (367)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
4618
Tried for
Parkinson's disease (103)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
4425
Tried for
Parkinson's disease (75)
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
4886
Tried for
Parkinson's disease (71)
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
4951
Tried for
Parkinson's disease (58)
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
1899
Tried for
Parkinson's disease (37)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
1767
Tried for
Parkinson's disease (35)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
2961
Tried for
Parkinson's disease (32)
Treatment name(s)

(Emsam)
Type
Prescription Drug
How many have tried
1896
Tried for
Parkinson's disease (28)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
1694
Tried for
Parkinson's disease (25)

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (368 evaluations)
Side effects
nausea fatigue 93 more
Total evaluations
371
Tried for
Parkinson's disease (367)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (84 evaluations)
Side effects
constipation dry mouth 35 more
Total evaluations
85
Tried for
Parkinson's disease (103)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (56 evaluations)
Side effects
nausea tiredness 27 more
Total evaluations
56
Tried for
Parkinson's disease (75)
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (62 evaluations)
Side effects
cognitive impairment confusion 18 more
Total evaluations
63
Tried for
Parkinson's disease (71)
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (40 evaluations)
Side effects
sleepiness nausea 29 more
Total evaluations
40
Tried for
Parkinson's disease (58)
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (21 evaluations)
Side effects
diarrhea sleepiness 8 more
Total evaluations
21
Tried for
Parkinson's disease (37)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (19 evaluations)
Side effects
nausea rashes (redness, swelling) 11 more
Total evaluations
20
Tried for
Parkinson's disease (35)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (24 evaluations)
Side effects
nausea abnormal urine color 16 more
Total evaluations
24
Tried for
Parkinson's disease (32)
Treatment name(s)

(Emsam)
Perceived effectiveness
for Parkinson's disease (13 evaluations)
Side effects
nausea dizziness 5 more
Total evaluations
13
Tried for
Parkinson's disease (28)
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (25 evaluations)
Side effects
Hospitalization balance problems 8 more
Total evaluations
25
Tried for
Parkinson's disease (25)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?

  • 126 new patients joined this month
  • 27768 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 13
20s 65
30s 250
40s 813
50s 3291
60s 7670
70+ 11431
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 244
30-39 years 833
40-49 years 1855
50-59 years 2669
60-69 years 1963
70+ years 605

Distribution of sex

Sex
Sex Proportion # of patients
Male 12245
Female 11663

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 218
Parkinsonism of unknown cause 3946
Parkinson's disease 13684
Parkinson's disease of inherited (genetic) origin 1504
Vascular parkinsonism 101
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9546
Not Diagnosed 314

These charts show data from Parkinson's disease patients who have completed their condition history
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