Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
549
Tried for
Parkinson's disease (545) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
145
Tried for
Parkinson's disease (140) jerky movements (6)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
142
Tried for
Parkinson's disease (142) stiffness/spasticity (1)
1 more
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
112
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
110
Tried for
Parkinson's disease (110) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
89
Tried for
Parkinson's disease (89) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
64
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
58
Tried for
Parkinson's disease (58)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
51
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
44
Tried for
Parkinson's disease (43) jerky movements (6)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (499 evaluations)
Side effects
nausea jerky movements 124 more
Total evaluations
513
Tried for
Parkinson's disease (545) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (122 evaluations)
Side effects
constipation dry mouth 50 more
Total evaluations
127
Tried for
Parkinson's disease (140) jerky movements (6)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (116 evaluations)
Side effects
constant tiredness daytime sleepiness 27 more
Total evaluations
119
Tried for
Parkinson's disease (142) stiffness/spasticity (1)
1 more
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (68 evaluations)
Side effects
nausea tiredness 33 more
Total evaluations
69
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (147 evaluations)
Side effects
jerky movements nausea 50 more
Total evaluations
147
Tried for
Parkinson's disease (110) stiffness/spasticity (7)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
sleepiness excessive daytime sleepiness (somnolence) 34 more
Total evaluations
52
Tried for
Parkinson's disease (89) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (54 evaluations)
Side effects
nausea daytime sleepiness 23 more
Total evaluations
55
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (29 evaluations)
Side effects
diarrhea nausea 10 more
Total evaluations
29
Tried for
Parkinson's disease (58)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (42 evaluations)
Side effects
insomnia nausea 18 more
Total evaluations
48
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (33 evaluations)
Side effects
Hospitalization balance problems 12 more
Total evaluations
34
Tried for
Parkinson's disease (43) jerky movements (6)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 66
30s 247
40s 922
50s 3476
60s 7755
70+ 10130
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 244
30-39 years 831
40-49 years 1857
50-59 years 2663
60-69 years 1958
70+ years 600

Distribution of sex

Sex
Sex Proportion # of patients
Male 11826
Female 11147

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 207
Parkinsonism of unknown cause 3792
Parkinson's disease 13370
Parkinson's disease of inherited (genetic) origin 1463
Vascular parkinsonism 98
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9525
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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