Parkinson's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
468
Tried for
Parkinson's disease (463) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
118
Tried for
Parkinson's disease (113) jerky movements (6)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
105
Tried for
Parkinson's disease (105) tremor(s) (1)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
90
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
83
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
73
Tried for
Parkinson's disease (73) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
49
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
46
Tried for
Parkinson's disease (46)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
41
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
36
Tried for
Parkinson's disease (35) jerky movements (5)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (449 evaluations)
Side effects
nausea jerky movements 111 more
Total evaluations
462
Tried for
Parkinson's disease (463) stiffness/spasticity (4)
4 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (94 evaluations)
Side effects
dry mouth blurry vision 37 more
Total evaluations
99
Tried for
Parkinson's disease (113) jerky movements (6)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (94 evaluations)
Side effects
nausea cognitive impairment 23 more
Total evaluations
96
Tried for
Parkinson's disease (105) tremor(s) (1)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (62 evaluations)
Side effects
nausea drowsiness 30 more
Total evaluations
63
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (105 evaluations)
Side effects
jerky movements constipation 44 more
Total evaluations
105
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (44 evaluations)
Side effects
sleepiness dizziness and feeling faint 31 more
Total evaluations
44
Tried for
Parkinson's disease (73) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (48 evaluations)
Side effects
nausea daytime sleepiness 16 more
Total evaluations
49
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (27 evaluations)
Side effects
diarrhea nausea 9 more
Total evaluations
27
Tried for
Parkinson's disease (46)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (41 evaluations)
Side effects
nausea insomnia 20 more
Total evaluations
46
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (29 evaluations)
Side effects
Hospitalization balance problems 9 more
Total evaluations
30
Tried for
Parkinson's disease (35) jerky movements (5)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Who has Parkinson's disease on PatientsLikeMe?

  • 29 new patients joined this month
  • 27013 say Parkinson's disease is their primary condition

Age
Age Proportion # of patients
<20 7
20s 61
30s 247
40s 871
50s 3404
60s 7732
70+ 10639
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 245
30-39 years 831
40-49 years 1859
50-59 years 2666
60-69 years 1962
70+ years 600

Distribution of sex

Sex
Sex Proportion # of patients
Male 11995
Female 11339

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 212
Parkinsonism of unknown cause 3848
Parkinson's disease 13504
Parkinson's disease of inherited (genetic) origin 1478
Vascular parkinsonism 99
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9536
Not Diagnosed 313

These charts show data from Parkinson's disease patients who have completed their condition history
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