Parkinson's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Ed explains in this video.

What is Parkinson's disease?

Parkinson's Disease is a progressive disorder of the nervous system marked by muscle tremors, muscle rigidity, decreased mobility, stooped posture, slow voluntary movements, and a mask-like facial expression.

Common symptoms reported by people with Parkinson's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Parkinson's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
537
Tried for
Parkinson's disease (533) stiffness/spasticity (4)
3 more
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
140
Tried for
Parkinson's disease (134) jerky movements (7)
3 more
Treatment name(s)

(Azilect)
Type
Prescription Drug
How many have tried
129
Tried for
Parkinson's disease (129) tremor(s) (1)
Treatment name(s)

(Mirapex)
Type
Prescription Drug
How many have tried
106
Treatment name(s)

(Rytary XR)
Type
Prescription Drug
How many have tried
100
Tried for
Parkinson's disease (100) stiffness/spasticity (6)
1 more
Treatment name(s)

(Requip)
Type
Prescription Drug
How many have tried
88
Tried for
Parkinson's disease (88) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Type
Prescription Drug
How many have tried
62
Treatment name(s)

(Comtan)
Type
Prescription Drug
How many have tried
59
Tried for
Parkinson's disease (59)
Treatment name(s)

(Stalevo)
Type
Prescription Drug
How many have tried
49
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Type
Equipment
How many have tried
41
Tried for
Parkinson's disease (40) jerky movements (6)
3 more

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Parkinson's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for Parkinson's disease (497 evaluations)
Side effects
nausea jerky movements 123 more
Total evaluations
510
Tried for
Parkinson's disease (533) stiffness/spasticity (4)
3 more
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for Parkinson's disease (118 evaluations)
Side effects
constipation dry mouth 47 more
Total evaluations
123
Tried for
Parkinson's disease (134) jerky movements (7)
3 more
Treatment name(s)

(Azilect)
Perceived effectiveness
for Parkinson's disease (101 evaluations)
Side effects
constant tiredness jerky movements 24 more
Total evaluations
104
Tried for
Parkinson's disease (129) tremor(s) (1)
Treatment name(s)

(Mirapex)
Perceived effectiveness
for Parkinson's disease (64 evaluations)
Side effects
nausea tiredness 32 more
Total evaluations
65
Treatment name(s)

(Rytary XR)
Perceived effectiveness
for Parkinson's disease (126 evaluations)
Side effects
jerky movements nausea 46 more
Total evaluations
126
Tried for
Parkinson's disease (100) stiffness/spasticity (6)
1 more
Treatment name(s)

(Requip)
Perceived effectiveness
for Parkinson's disease (52 evaluations)
Side effects
sleepiness dizziness and feeling faint 34 more
Total evaluations
52
Tried for
Parkinson's disease (88) tremor(s) (1)
Treatment name(s)

(Neupro Patch)
Perceived effectiveness
for Parkinson's disease (55 evaluations)
Side effects
nausea daytime sleepiness 23 more
Total evaluations
56
Treatment name(s)

(Comtan)
Perceived effectiveness
for Parkinson's disease (30 evaluations)
Side effects
diarrhea nausea 10 more
Total evaluations
30
Tried for
Parkinson's disease (59)
Treatment name(s)

(Stalevo)
Perceived effectiveness
for Parkinson's disease (42 evaluations)
Side effects
insomnia nausea 17 more
Total evaluations
48
Treatment name(s)

(Subthalamic Nucleus Deep Brain Stimulation)
Perceived effectiveness
for Parkinson's disease (33 evaluations)
Side effects
Hospitalization balance problems 11 more
Total evaluations
34
Tried for
Parkinson's disease (40) jerky movements (6)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Parkinson's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Parkinson's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 64
30s 247
40s 914
50s 3464
60s 7842
70+ 10386
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 72
20-29 years 245
30-39 years 831
40-49 years 1857
50-59 years 2663
60-69 years 1960
70+ years 600

Distribution of sex

Sex
Sex Proportion # of patients
Male 11983
Female 11314

Types
Condition Types Proportion # of patients
Drug-induced parkinsonism 211
Parkinsonism of unknown cause 3839
Parkinson's disease 13488
Parkinson's disease of inherited (genetic) origin 1478
Vascular parkinsonism 99
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9530
Not Diagnosed 311

These charts show data from Parkinson's disease patients who have completed their condition history
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