Multiple system atrophy

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What is multiple system atrophy?

Multiple system atrophy (MSA) is a degenerative neurological disorder. MSA is associated with the degeneration of nerve cells in specific areas of the brain. This cell degeneration causes problems with movement, balance and autonomic functions of the body such as bladder control.

Common symptoms reported by people with multiple system atrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for multiple system atrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
312
Tried for
multiple system atrophy (6)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
154
Tried for
multiple system atrophy (2)
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
144
Tried for
multiple system atrophy (2)

Data from patients with multiple system atrophy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with multiple system atrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Sinemet)
Perceived effectiveness
for multiple system atrophy (5 evaluations)
Side effects
constipation freezing of gait 2 more
Total evaluations
7
Tried for
multiple system atrophy (6)
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
morning sleepiness
Total evaluations
1
Tried for
multiple system atrophy (2)
Treatment name(s)

(Florinef)
Perceived effectiveness
for multiple system atrophy (1 evaluation)
Side effects
fluid retention weight gain
Total evaluations
1
Tried for
multiple system atrophy (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple system atrophy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has multiple system atrophy on PatientsLikeMe?

  • 0 new patients joined this month
  • 947 say MSA is their primary condition

Age
Age Proportion # of patients
<20 0
20s 5
30s 27
40s 41
50s 171
60s 311
70+ 249
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 8
20-29 years 14
30-39 years 32
40-49 years 89
50-59 years 163
60-69 years 76
70+ years 14

Distribution of sex

Sex
Sex Proportion # of patients
Male 362
Female 427

Types
Condition Types Proportion # of patients
Multiple system atrophy (MSA) 341
Olivopontocerebellar atrophy (OPCA/MSA-c) 117
Shy-Drager syndrome (MSA-a) 70
Striatonigral degeneration (MSA-p) 93
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 412
Not Diagnosed 61

These charts show data from MSA patients who have completed their condition history
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