Multiple system atrophy
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is multiple system atrophy?
Multiple system atrophy (MSA) is a degenerative neurological disorder. MSA is associated with the degeneration of nerve cells in specific areas of the brain. This cell degeneration causes problems with movement, balance and autonomic functions of the body such as bladder control.
Common symptoms reported by people with multiple system atrophy
Common symptoms
How bad it is
What people are taking for it
Common symptom
Excessive daytime sleepiness (somnolence)
How bad it is
What people are taking for it
Common symptom
Cold sensation in feet
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Cold sensation in hand(s)
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for multiple system atrophy
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with multiple system atrophy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:
Compare treatments taken by people with multiple system atrophy
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for multiple system atrophy (5 evaluations)
Total evaluations
7
Tried for
multiple system atrophy
(6)
Perceived effectiveness
No evaluations
Side effects
morning sleepiness
Total evaluations
1
Tried for
multiple system atrophy
(2)
Perceived effectiveness
for multiple system atrophy (1 evaluation)
Side effects
fluid retention weight gain
Total evaluations
1
Tried for
multiple system atrophy
(2)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with multiple system atrophy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:
Who has multiple system atrophy on PatientsLikeMe?
- 0 new patients joined this month
- 947 say MSA is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 5 | |
| 30s | 27 | |
| 40s | 41 | |
| 50s | 171 | |
| 60s | 311 | |
| 70+ | 249 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 8 | |
| 20-29 years | 14 | |
| 30-39 years | 32 | |
| 40-49 years | 89 | |
| 50-59 years | 163 | |
| 60-69 years | 76 | |
| 70+ years | 14 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 362 | |
| Female | 427 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| Multiple system atrophy (MSA) | 341 | |
| Olivopontocerebellar atrophy (OPCA/MSA-c) | 117 | |
| Shy-Drager syndrome (MSA-a) | 70 | |
| Striatonigral degeneration (MSA-p) | 93 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 412 | |
| Not Diagnosed | 61 |
These charts show data from MSA patients who have completed their condition history
Last updated: