About I Have IIH

We are an International IIH Patient/Advocacy Support Organisation working with the IH Brain Pain Organisation. Together we are passionate and dedicated to raising awareness and funds for the IH Research Foundation. We are in Partnership with the Brain and Spine Foundation,Rare Disease UK,Rare Disease Day USA, the Global Genes Project, IH Australia, and we also are a Cure the Process Campaign Partner. We strongly advocate and encourage support for these organisations.

We are also members of the RARE Alliance Foundation


Profile Activity



Member since:
Mar 9, 2012

Last updated:
Oct 17, 2017

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