Traumatic brain injury

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is traumatic brain injury?

Traumatic brain injury (TBI) occurs when an external force traumatically injures the brain. An open TBI occurs when the skull is penetrated. Closed TBI involves internal injuries to the brain. The injury to brain tissue temporarily or permanently impairs brain function.

Common symptoms reported by people with traumatic brain injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with traumatic brain injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
26
Tried for
traumatic brain injury (25) dizziness (1)
1 more
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
16
Tried for
depressed mood (16)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
12
Tried for
depressed mood (12)
Type
Psychotherapy
How many have tried
10
Tried for
traumatic brain injury (10)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
pain (10) traumatic brain injury (1)
Treatment name(s)

(Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
10
Tried for
traumatic brain injury (10)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
9
Tried for
anxious mood (9)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (7) anxious mood (6)
Treatment name(s)
Type
Physical Therapy
How many have tried
8
Tried for
traumatic brain injury (8)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)

Data from patients with traumatic brain injury, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with traumatic brain injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for traumatic brain injury (27 evaluations)
Side effects
chronic headaches corns and calluses 7 more
Total evaluations
33
Tried for
traumatic brain injury (25) dizziness (1)
1 more
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (10 evaluations)
Side effects
decreased sex drive (libido) difficulty staying asleep 6 more
Total evaluations
10
Tried for
depressed mood (16)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
increased energy nervousness 2 more
Total evaluations
6
Tried for
depressed mood (12)
Perceived effectiveness
for traumatic brain injury (5 evaluations)
Side effects
joint pain
Total evaluations
5
Tried for
traumatic brain injury (10)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (6 evaluations)
Side effects
numbness in face rolling pain in upper abdomen and chest
Total evaluations
6
Tried for
pain (10) traumatic brain injury (1)
Treatment name(s)

(Outpatient Occupational Therapy)
Perceived effectiveness
for traumatic brain injury (7 evaluations)
Side effects
difficulty driving hostility
Total evaluations
7
Tried for
traumatic brain injury (10)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
drowsiness loss of coordination 2 more
Total evaluations
5
Tried for
anxious mood (9)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
diarrhea ejaculation delayed 7 more
Total evaluations
8
Tried for
depressed mood (7) anxious mood (6)
Treatment name(s)
Perceived effectiveness
for traumatic brain injury (3 evaluations)
Side effects
fatigue headaches
Total evaluations
3
Tried for
traumatic brain injury (8)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (5 evaluations)
Side effects
blurry vision constipation 2 more
Total evaluations
5
Tried for
pain (7)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with traumatic brain injury, who reported starting treatments within the last 5 years.
Last updated:

Who has traumatic brain injury on PatientsLikeMe?


Age
Age Proportion # of patients
<20 53
20s 443
30s 1748
40s 2249
50s 2156
60s 1166
70+ 268
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 291
20-29 years 338
30-39 years 297
40-49 years 286
50-59 years 125
60-69 years 12
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 3904
Female 4232

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2329
Not Diagnosed 144

These charts show data from TBI patients who have completed their condition history
Last updated: