Traumatic brain injury

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is traumatic brain injury?

Traumatic brain injury (TBI) occurs when an external force traumatically injures the brain. An open TBI occurs when the skull is penetrated. Closed TBI involves internal injuries to the brain. The injury to brain tissue temporarily or permanently impairs brain function.

Common symptoms reported by people with traumatic brain injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for traumatic brain injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Outpatient PT)
Type
Physical Therapy
How many have tried
1727
Tried for
traumatic brain injury (21)
Type
Psychotherapy
How many have tried
2447
Tried for
traumatic brain injury (10)
Treatment name(s)

(Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
1292
Tried for
traumatic brain injury (9)
Treatment name(s)
Type
Physical Therapy
How many have tried
1247
Tried for
traumatic brain injury (5)

Data from patients with traumatic brain injury, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with traumatic brain injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Outpatient PT)
Perceived effectiveness
for traumatic brain injury (26 evaluations)
Side effects
corns and calluses fatigue 4 more
Total evaluations
29
Tried for
traumatic brain injury (21)
Perceived effectiveness
for traumatic brain injury (5 evaluations)
Side effects
joint pain
Total evaluations
5
Tried for
traumatic brain injury (10)
Treatment name(s)

(Outpatient Occupational Therapy)
Perceived effectiveness
for traumatic brain injury (7 evaluations)
Side effects
difficulty driving hostility
Total evaluations
7
Tried for
traumatic brain injury (9)
Treatment name(s)
Perceived effectiveness
for traumatic brain injury (2 evaluations)
Side effects
headaches
Total evaluations
2
Tried for
traumatic brain injury (5)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with traumatic brain injury, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has traumatic brain injury on PatientsLikeMe?

  • 5 new patients joined this month
  • 4100 say TBI is their primary condition

Age
Age Proportion # of patients
<20 50
20s 415
30s 1703
40s 2224
50s 2205
60s 1204
70+ 292
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 293
20-29 years 340
30-39 years 297
40-49 years 288
50-59 years 126
60-69 years 12
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 3907
Female 4240

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2333
Not Diagnosed 145

These charts show data from TBI patients who have completed their condition history
Last updated: