Traumatic brain injury

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is traumatic brain injury?

Traumatic brain injury (TBI) occurs when an external force traumatically injures the brain. An open TBI occurs when the skull is penetrated. Closed TBI involves internal injuries to the brain. The injury to brain tissue temporarily or permanently impairs brain function.

Common symptoms reported by people with traumatic brain injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for traumatic brain injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Outpatient PT)
Type
Physical Therapy
How many have tried
1729
Tried for
traumatic brain injury (12)
Type
Psychotherapy
How many have tried
2451
Tried for
traumatic brain injury (8)
Treatment name(s)

(Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
1292
Tried for
traumatic brain injury (6)
Treatment name(s)
Type
Physical Therapy
How many have tried
1248
Tried for
traumatic brain injury (3)

Data from patients with traumatic brain injury, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with traumatic brain injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Outpatient PT)
Perceived effectiveness
for traumatic brain injury (19 evaluations)
Side effects
headaches pain in lower back 1 more
Total evaluations
22
Tried for
traumatic brain injury (12)
Perceived effectiveness
for traumatic brain injury (4 evaluations)
Side effects
joint pain
Total evaluations
4
Tried for
traumatic brain injury (8)
Treatment name(s)

(Outpatient Occupational Therapy)
Perceived effectiveness
for traumatic brain injury (6 evaluations)
Side effects
difficulty driving
Total evaluations
6
Tried for
traumatic brain injury (6)
Treatment name(s)
Perceived effectiveness
for traumatic brain injury (1 evaluation)
Side effects
headaches
Total evaluations
1
Tried for
traumatic brain injury (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with traumatic brain injury, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has traumatic brain injury on PatientsLikeMe?

  • 4 new patients joined this month
  • 4105 say TBI is their primary condition

Age
Age Proportion # of patients
<20 45
20s 384
30s 1667
40s 2185
50s 2253
60s 1256
70+ 321
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 293
20-29 years 341
30-39 years 296
40-49 years 290
50-59 years 129
60-69 years 12
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 3913
Female 4252

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2334
Not Diagnosed 145

These charts show data from TBI patients who have completed their condition history
Last updated: