Traumatic brain injury

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is traumatic brain injury?

Traumatic brain injury (TBI) occurs when an external force traumatically injures the brain. An open TBI occurs when the skull is penetrated. Closed TBI involves internal injuries to the brain. The injury to brain tissue temporarily or permanently impairs brain function.

Common symptoms reported by people with traumatic brain injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with traumatic brain injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Home Physical Therapy)
Type
Physical Therapy
How many have tried
37
Tried for
traumatic brain injury (36) dizziness (1)
1 more
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
25
Tried for
depressed mood (25)
Type
Psychotherapy
How many have tried
15
Tried for
traumatic brain injury (15)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
14
Tried for
depressed mood (14)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
13
Tried for
pain (12) anxious mood (1)
1 more
Treatment name(s)

(Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
13
Tried for
traumatic brain injury (13)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
12
Tried for
anxious mood (12)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
11
Tried for
depressed mood (10) anxious mood (7)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
11
Tried for
depressed mood (11)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
10
Tried for
anxious mood (10)

Data from patients with traumatic brain injury, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with traumatic brain injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Home Physical Therapy)
Perceived effectiveness
for traumatic brain injury (24 evaluations)
Side effects
fatigue pain 7 more
Total evaluations
32
Tried for
traumatic brain injury (36) dizziness (1)
1 more
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (16 evaluations)
Side effects
decreased sex drive (libido) diarrhea 10 more
Total evaluations
19
Tried for
depressed mood (25)
Perceived effectiveness
for traumatic brain injury (9 evaluations)
Side effects
agitation flashbacks 6 more
Total evaluations
9
Tried for
traumatic brain injury (15)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
nervousness anxious mood 4 more
Total evaluations
9
Tried for
depressed mood (14)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
numbness in face rolling pain in upper abdomen and chest 1 more
Total evaluations
11
Tried for
pain (12) anxious mood (1)
1 more
Treatment name(s)

(Outpatient Occupational Therapy)
Perceived effectiveness
for traumatic brain injury (6 evaluations)
Side effects
difficulty driving Hospitalization 1 more
Total evaluations
6
Tried for
traumatic brain injury (13)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (6 evaluations)
Side effects
drowsiness decreased appetite 4 more
Total evaluations
6
Tried for
anxious mood (12)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (9 evaluations)
Side effects
decreased sex drive (libido) diarrhea 8 more
Total evaluations
10
Tried for
depressed mood (10) anxious mood (7)
Treatment name(s)

(Prozac)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
auditory hallucinations balance problems 10 more
Total evaluations
5
Tried for
depressed mood (11)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (9 evaluations)
Side effects
drowsiness tiredness
Total evaluations
10
Tried for
anxious mood (10)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with traumatic brain injury, who reported starting treatments within the last 5 years.
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Who has traumatic brain injury on PatientsLikeMe?


Age
Age Proportion # of patients
<20 59
20s 476
30s 1816
40s 2249
50s 2122
60s 1086
70+ 240
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 292
20-29 years 336
30-39 years 297
40-49 years 286
50-59 years 124
60-69 years 12
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 3895
Female 4208

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2331
Not Diagnosed 144

These charts show data from TBI patients who have completed their condition history
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