Systemic vasculitis
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is systemic vasculitis?
Systemic vasculitis is the inflammation of the blood vessels. The inflammation can decrease blood flow or even stop the blood flow; vessels can expand, thicken, and weaken, leading to a bulge (or aneurysm) or possibly a ruptured blood vessel.
Common symptoms reported by people with systemic vasculitis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with systemic vasculitis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with systemic vasculitis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with systemic vasculitis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
systemic vasculitis
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence)
sweet cravings
Total evaluations
1
Tried for
anxious mood
(1)
depressed mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with systemic vasculitis, who reported starting treatments within the last 5 years.
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Who has systemic vasculitis on PatientsLikeMe?
- 84 patients have this condition
- 0 new patients joined this month
- 16 say systemic vasculitis is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 6 | |
| 30s | 7 | |
| 40s | 18 | |
| 50s | 30 | |
| 60s | 17 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 4 | |
| 30-39 years | 13 | |
| 40-49 years | 5 | |
| 50-59 years | 8 | |
| 60-69 years | 1 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 9 | |
| Female | 75 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 46 | |
| Not Diagnosed | 1 |
These charts show data from systemic vasculitis patients who have completed their condition history
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