What is stiff person syndrome?
Stiff person syndrome is an uncommon disorder characterized by progressive muscle stiffness, rigidity, and spasm involving the axial muscles, resulting in severely impaired ambulation.
How do members experience stiff person syndrome?
Top 5 symptoms reported by people with stiff person syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Disordered muscle tension (dystonia)
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Depressed mood
How bad it is
What people are taking for it
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for stiff person syndrome*
Treatment
Type
How many have tried
Tried for
Type
Prescription Drug
How many have tried
74
Tried for
stiff person syndrome
(1)
*Data from patients with stiff person syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Compare treatments taken by people with stiff person syndrome*
Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for stiff person syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
stiff person syndrome
(1)
*Data from patients with stiff person syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Who has stiff person syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 2 | |
| 30s | 8 | |
| 40s | 30 | |
| 50s | 39 | |
| 60s | 49 | |
| 70+ | 28 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 44 | |
| Female | 114 |