Spinal cord injury

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is spinal cord injury?

Spinal cord injury may involve the spinal cord, vertebrae, or both that causes permanent and/or progressive interruption of impulse conduction.

Common symptoms reported by people with spinal cord injury

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with spinal cord injury

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
4
Tried for
spinal cord injury (3) pain (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
spinal cord injury (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
2
Tried for
pain (1) spinal cord injury (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Oxycodone IR)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Percocet)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
pain (1)

Data from patients with spinal cord injury, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with spinal cord injury

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Lyrica)
Perceived effectiveness
for spinal cord injury (2 evaluations)
Side effects
dry mouth
Total evaluations
3
Tried for
spinal cord injury (3) pain (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for spinal cord injury (1 evaluation)
Side effects
bone loss
Total evaluations
1
Tried for
spinal cord injury (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
No evaluations
Side effects
dizziness fatigue
Total evaluations
1
Tried for
pain (1) spinal cord injury (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (2)
Treatment name(s)

(Oxycodone IR)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Percocet)
Perceived effectiveness
for pain (2 evaluations)
Side effects
constipation lightheadedness
Total evaluations
2
Tried for
pain (2)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)
Perceived effectiveness
for pain (1 evaluation)
Side effects
migraine headaches numbness in face
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spinal cord injury, who reported starting treatments within the last 5 years.
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Who has spinal cord injury on PatientsLikeMe?

  • 2 new patients joined this month
  • 1359 say spinal cord injury is their primary condition

Age
Age Proportion # of patients
<20 13
20s 63
30s 180
40s 300
50s 425
60s 294
70+ 130

Distribution of sex

Sex
Sex Proportion # of patients
Male 748
Female 694

These charts show data from spinal cord injury patients who have completed their condition history
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