Spina bifida occulta

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is spina bifida occulta?

Spina bifida is the defective closure of the vertebral column. Spina bifida occulta is a mild type of where the outer part of some of the vertebrae are not completely closed. Some people are not aware they have the condition although there may be a small dimple or birthmark on the skin

Common symptoms reported by people with spina bifida occulta

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for spina bifida occulta

Let’s build this page together! When you share what it’s like to have spina bifida occulta through your profile, those stories and data appear here too.

Got a question about living with spina bifida occulta? Members in the forum might have the answers.

Compare treatments taken by people with spina bifida occulta

Let’s build this page together! When you share what it’s like to have spina bifida occulta through your profile, those stories and data appear here too.

Got a question about living with spina bifida occulta? Members in the forum might have the answers.

Who has spina bifida occulta on PatientsLikeMe?

  • 2 new patients joined this month
  • 39 say spina bifida occulta is their primary condition

Age
Age Proportion # of patients
<20 5
20s 8
30s 23
40s 33
50s 25
60s 12
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 36
20-29 years 5
30-39 years 3
40-49 years 4
50-59 years 0
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 11
Female 98

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 65
Not Diagnosed 4

These charts show data from spina bifida occulta patients who have completed their condition history
Last updated: