Sarcoidosis

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is sarcoidosis?

Sarcoidosis is an inflammatory disease characterized by small lumps or granulomas. It usually invades the lungs with fibrosis and may also involve lymph nodes, skin, liver, spleen, eyes, phalangeal bones, and parotid glands.

Common symptoms reported by people with sarcoidosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for sarcoidosis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
269
Tried for
sarcoidosis (4)

Data from patients with sarcoidosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with sarcoidosis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for sarcoidosis (1 evaluation)
Side effects
Total evaluations
1
Tried for
sarcoidosis (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with sarcoidosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has sarcoidosis on PatientsLikeMe?

  • 0 new patients joined this month
  • 343 say sarcoidosis is their primary condition

Age
Age Proportion # of patients
<20 1
20s 12
30s 35
40s 84
50s 207
60s 141
70+ 69
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 16
20-29 years 47
30-39 years 56
40-49 years 63
50-59 years 37
60-69 years 8
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 146
Female 400

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 294
Not Diagnosed 12

These charts show data from sarcoidosis patients who have completed their condition history
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