Chronic kidney disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is chronic kidney disease?

Chronic kidney disease (CKD) occurs when the kidneys fail to adequately filter toxins and waste products from the blood. The most common causes of chronic kidney disease are diabetes and high blood pressure. CKD can progress to complete kidney failure, also called end stage renal disease.

Common symptoms reported by people with chronic kidney disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with chronic kidney disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
9
Tried for
anxious mood (9)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
6
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
6
Tried for
depressed mood (6)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (4) anxious mood (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Tried for
pain (4) chronic kidney disease (1)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
4
Tried for
pain (4)

Data from patients with chronic kidney disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with chronic kidney disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (6 evaluations)
Side effects
dizziness panic attacks 3 more
Total evaluations
6
Tried for
anxious mood (9)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (10 evaluations)
Side effects
drowsiness drowsy in morning 2 more
Total evaluations
11
Tried for
pain (7)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
crying easily dry mouth 1 more
Total evaluations
6
Tried for
pain (5) depressed mood (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (4 evaluations)
Side effects
drowsiness
Total evaluations
4
Tried for
pain (6)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
excessive daytime sleepiness (somnolence) nausea
Total evaluations
6
Tried for
depressed mood (6)
Treatment name(s)

(Abilify)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
drowsiness
Total evaluations
3
Tried for
depressed mood (5)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (5 evaluations)
Side effects
bad taste in mouth dizziness 1 more
Total evaluations
8
Tried for
depressed mood (4) anxious mood (1)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (4 evaluations)
Side effects
drowsiness irritable bowel syndrome
Total evaluations
5
Tried for
pain (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (4) chronic kidney disease (1)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
4
Tried for
pain (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic kidney disease, who reported starting treatments within the last 5 years.
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Who has chronic kidney disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 81
30s 202
40s 419
50s 753
60s 879
70+ 534
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 87
20-29 years 79
30-39 years 94
40-49 years 120
50-59 years 136
60-69 years 67
70+ years 20

Distribution of sex

Sex
Sex Proportion # of patients
Male 1000
Female 1931

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1071
Not Diagnosed 29

These charts show data from chronic kidney disease patients who have completed their condition history
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