Psychogenic non-epileptic seizures

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What is psychogenic non-epileptic seizures?

Psychogenic non-epileptic seizures are events resembling an epileptic seizure, but without the characteristic electrical discharges associated with epilepsy. Instead, PNES are psychological in origin.

Common symptoms reported by people with psychogenic non-epileptic seizures

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (7) anxious mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) anxious mood (1)
1 more
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Prozac)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
difficulty sleeping when on full dose dry mouth at night 8 more
Total evaluations
4
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (6 evaluations)
Side effects
apathy diarrhea 4 more
Total evaluations
11
Tried for
depressed mood (7) anxious mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
insomnia
Total evaluations
3
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (3 evaluations)
Side effects
gastrointestinal bleeding
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
increased energy insomnia
Total evaluations
4
Tried for
depressed mood (4) anxious mood (1)
1 more
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(BuSpar)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
abdominal pain
Total evaluations
3
Tried for
depressed mood (2) anxious mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
excessive daytime sleepiness (somnolence) increased sleepiness
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Prozac)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (3 evaluations)
Side effects
cognitive confusion constipation
Total evaluations
3
Tried for
pain (3)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Who has psychogenic non-epileptic seizures on PatientsLikeMe?


Age
Age Proportion # of patients
<20 20
20s 71
30s 118
40s 200
50s 158
60s 74
70+ 16
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 59
30-39 years 70
40-49 years 57
50-59 years 13
60-69 years 2
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 125
Female 531

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 366
Not Diagnosed 56

These charts show data from psychogenic non-epileptic seizures patients who have completed their condition history
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