Postural orthostatic tachycardia syndrome

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What is postural orthostatic tachycardia syndrome?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with postural orthostatic tachycardia syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
26
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
11
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
pain (10) anxious mood (1)
Treatment name(s)

(ProAmatine)
Type
Prescription Drug
How many have tried
10
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
9
Tried for
anxious mood (9) pain (1)
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9) depressed mood (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
9
Tried for
pain (9)
Treatment name(s)

(Jobst Compression Stockings)
Type
Equipment
How many have tried
8
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (7) pain (3)
2 more
Treatment name(s)

(Corlanor)
Type
Prescription Drug
How many have tried
8

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Florinef)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (11 evaluations)
Side effects
abdominal cramps chronic headaches 7 more
Total evaluations
16
Treatment name(s)

(Inderal)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (6 evaluations)
Side effects
alcohol intolerance fatigue 5 more
Total evaluations
7
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
excessive appetite excessive dry mouth 1 more
Total evaluations
3
Tried for
pain (10) anxious mood (1)
Treatment name(s)

(ProAmatine)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (3 evaluations)
Side effects
head pressure itchy scalp 1 more
Total evaluations
3
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (9 evaluations)
Side effects
drowsiness grogginess
Total evaluations
9
Tried for
anxious mood (9) pain (1)
Treatment name(s)

(Flexeril)
Perceived effectiveness
for pain (5 evaluations)
Side effects
dry mouth sleepiness 2 more
Total evaluations
5
Tried for
pain (9) depressed mood (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (5 evaluations)
Side effects
constipation drowsiness 1 more
Total evaluations
5
Tried for
pain (9)
Treatment name(s)

(Jobst Compression Stockings)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (5 evaluations)
Side effects
muscle soreness numbness 1 more
Total evaluations
5
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
dry mouth nausea 4 more
Total evaluations
9
Tried for
depressed mood (7) pain (3)
2 more
Treatment name(s)

(Corlanor)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (8 evaluations)
Side effects
blood pressure fluctuates dizziness and feeling faint 2 more
Total evaluations
8
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Who has postural orthostatic tachycardia syndrome on PatientsLikeMe?


Age
Age Proportion # of patients
<20 48
20s 266
30s 274
40s 207
50s 133
60s 65
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 264
20-29 years 106
30-39 years 82
40-49 years 65
50-59 years 24
60-69 years 4
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 73
Female 945

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 597
Not Diagnosed 79

These charts show data from POTS patients who have completed their condition history
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