Postural orthostatic tachycardia syndrome

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What is postural orthostatic tachycardia syndrome?

Postural orthostatic tachycardia syndrome is a condition of orthostatic intolerance, in which a change from the supine position to an upright position causes an abnormally large increase in heart rate, called tachycardia.

Common symptoms reported by people with postural orthostatic tachycardia syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Florinef)
Type
Prescription Drug
How many have tried
16
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
10
Tried for
pain (10) anxious mood (1)
Treatment name(s)

(ProAmatine)
Type
Prescription Drug
How many have tried
9
Treatment name(s)

(Corlanor)
Type
Prescription Drug
How many have tried
7
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
7
Tried for
pain (7)
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
6
Tried for
pain (6) anxious mood (4)
2 more
Treatment name(s)

(Metoprolol Tartrate)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
6
Tried for
pain (6) depressed mood (1)
Treatment name(s)

(Inderal)
Type
Prescription Drug
How many have tried
6
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
6
Tried for
pain (6)

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with postural orthostatic tachycardia syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Florinef)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (10 evaluations)
Side effects
elevated blood sugar (hyperglycemia) fatigue 3 more
Total evaluations
10
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (2 evaluations)
Side effects
excessive appetite excessive dry mouth
Total evaluations
2
Tried for
pain (10) anxious mood (1)
Treatment name(s)

(ProAmatine)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (5 evaluations)
Side effects
head pressure head tingling 2 more
Total evaluations
5
Treatment name(s)

(Corlanor)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (7 evaluations)
Side effects
headaches
Total evaluations
7
Treatment name(s)

(Mobic)
Perceived effectiveness
for pain (5 evaluations)
Side effects
dizziness tachycardia (fast heart rate)
Total evaluations
5
Tried for
pain (7)
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain (6) anxious mood (4)
2 more
Treatment name(s)

(Metoprolol Tartrate)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (4 evaluations)
Side effects
hypotension low blood pressure 2 more
Total evaluations
4
Treatment name(s)

(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (6) depressed mood (1)
Treatment name(s)

(Inderal)
Perceived effectiveness
for postural orthostatic tachycardia syndrome (4 evaluations)
Side effects
alcohol intolerance fatigue 4 more
Total evaluations
4
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (6 evaluations)
Side effects
constipation drowsiness 1 more
Total evaluations
6
Tried for
pain (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with postural orthostatic tachycardia syndrome, who reported starting treatments within the last 5 years.
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Who has postural orthostatic tachycardia syndrome on PatientsLikeMe?

  • 4 new patients joined this month
  • 419 say POTS is their primary condition

Age
Age Proportion # of patients
<20 33
20s 287
30s 300
40s 242
50s 149
60s 81
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 274
20-29 years 116
30-39 years 88
40-49 years 64
50-59 years 25
60-69 years 5
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 87
Female 1037

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 626
Not Diagnosed 86

These charts show data from POTS patients who have completed their condition history
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