Peripheral neuropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is peripheral neuropathy?

Peripheral nerves are those that are outside your brain and spinal cord. Symptoms of peripheral neuropathy may start gradually but worsen over time and may include numbness, pain, burning or tingling, muscle weakness, and sensitivity to touch.

Common symptoms reported by people with peripheral neuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for peripheral neuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
2341
Tried for
peripheral neuropathy (33)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
508
Tried for
peripheral neuropathy (17)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
863
Tried for
peripheral neuropathy (16)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
569
Tried for
peripheral neuropathy (16)
Treatment name(s)

(Mexitil)
Type
Prescription Drug
How many have tried
27
Tried for
peripheral neuropathy (1)

Data from patients with peripheral neuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with peripheral neuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for peripheral neuropathy (35 evaluations)
Side effects
blurry vision excessive daytime sleepiness (somnolence) 10 more
Total evaluations
37
Tried for
peripheral neuropathy (33)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for peripheral neuropathy (7 evaluations)
Side effects
brain fog decreased appetite 13 more
Total evaluations
8
Tried for
peripheral neuropathy (17)
Treatment name(s)

(Elavil)
Perceived effectiveness
for peripheral neuropathy (8 evaluations)
Side effects
anxious mood constipation 13 more
Total evaluations
10
Tried for
peripheral neuropathy (16)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for peripheral neuropathy (23 evaluations)
Side effects
anxious mood asthma 14 more
Total evaluations
23
Tried for
peripheral neuropathy (16)
Treatment name(s)

(Mexitil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
peripheral neuropathy (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with peripheral neuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has peripheral neuropathy on PatientsLikeMe?

  • 10 new patients joined this month
  • 2695 say peripheral neuropathy is their primary condition

Age
Age Proportion # of patients
<20 1
20s 53
30s 236
40s 597
50s 1241
60s 1446
70+ 1240
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 54
20-29 years 175
30-39 years 412
40-49 years 583
50-59 years 510
60-69 years 215
70+ years 55

Distribution of sex

Sex
Sex Proportion # of patients
Male 1486
Female 3360

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2466
Not Diagnosed 133

These charts show data from peripheral neuropathy patients who have completed their condition history
Last updated: