What is Parry Romberg syndrome?
Parry Romberg Syndrome is the atrophy or wasting away of the soft tissues of the face; it usually occurs on the left half of the face (hemifacial atrophy). Symptoms usually occur before the age of 20 years.
How do members experience Parry Romberg syndrome?
Top 5 symptoms reported by people with Parry Romberg syndrome*
Common symptoms
How bad it is
What people are taking for it
Common symptom
Stress
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Fatigue
How bad it is
What people are taking for it
Nothing reported yet
Common symptom
Anxious mood
How bad it is
What people are taking for it
Common symptom
Depressed mood
How bad it is
What people are taking for it
Nothing reported yet
*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Top treatments taken by people for Parry Romberg syndrome*
Who has Parry Romberg syndrome on PatientsLikeMe?
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 8 | |
| 30s | 5 | |
| 40s | 13 | |
| 50s | 15 | |
| 60s | 5 | |
| 70+ | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 9 | |
| Female | 40 |