Panhypopituitarism

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is panhypopituitarism?

The pituitary gland at the base of the brain normally secretes eight hormones. Panhypopituitarism is when there is a decrease secretion of most of the pituitary hormones.

Common symptoms reported by people with panhypopituitarism

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for panhypopituitarism

Let’s build this page together! When you share what it’s like to have panhypopituitarism through your profile, those stories and data appear here too.

Got a question about living with panhypopituitarism? Members in the forum might have the answers.

Compare treatments taken by people with panhypopituitarism

Let’s build this page together! When you share what it’s like to have panhypopituitarism through your profile, those stories and data appear here too.

Got a question about living with panhypopituitarism? Members in the forum might have the answers.

Who has panhypopituitarism on PatientsLikeMe?

  • 0 new patients joined this month
  • 85 say panhypopituitarism is their primary condition

Age
Age Proportion # of patients
<20 2
20s 13
30s 16
40s 28
50s 25
60s 33
70+ 7
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 7
30-39 years 14
40-49 years 6
50-59 years 4
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 40
Female 83

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 57
Not Diagnosed 0

These charts show data from panhypopituitarism patients who have completed their condition history
Last updated: