Orbital pseudotumor
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is orbital pseudotumor?
Orbital pseudotumor is a non cancerous swelling of the tissues behind the eye (orbit). The orbit is the bony area of the skull surrounding the eye. It protects the eyeball and the muscles and tissue that surround it. Some symptoms include pain, swelling, and decreased eye movement.
Common symptoms reported by people with orbital pseudotumor
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with orbital pseudotumor
Compare treatments taken by people with orbital pseudotumor
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with orbital pseudotumor, who reported starting treatments within the last 5 years.
Last updated:
Who has orbital pseudotumor on PatientsLikeMe?
- 14 patients have this condition
- 0 new patients joined this month
- 8 say orbital pseudotumor is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 0 | |
| 30s | 3 | |
| 40s | 1 | |
| 50s | 4 | |
| 60s | 2 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 1 | |
| 30-39 years | 0 | |
| 40-49 years | 1 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 3 | |
| Female | 9 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6 | |
| Not Diagnosed | 0 |
These charts show data from orbital pseudotumor patients who have completed their condition history
Last updated: