Normal pressure hydrocephalus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is normal pressure hydrocephalus?

Normal pressure hydrocephalus (NPH), also known as idiopathic normal pressure hydrocephalus (INPH), is a condition characterized by the clinical features of hydrocephalus without significantly elevated cerebrospinal fluid (CSF) pressure as measured by lumbar puncture.

Common symptoms reported by people with normal pressure hydrocephalus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with normal pressure hydrocephalus

Let’s build this page together! When you share what it’s like to have normal pressure hydrocephalus through your profile, those stories and data appear here too.

Got a question about living with normal pressure hydrocephalus? Members in the forum might have the answers.

Compare treatments taken by people with normal pressure hydrocephalus

Let’s build this page together! When you share what it’s like to have normal pressure hydrocephalus through your profile, those stories and data appear here too.

Got a question about living with normal pressure hydrocephalus? Members in the forum might have the answers.

Who has normal pressure hydrocephalus on PatientsLikeMe?

  • 1 new patients joined this month
  • 89 say normal pressure hydrocephalus is their primary condition

Age
Age Proportion # of patients
<20 2
20s 10
30s 4
40s 13
50s 10
60s 26
70+ 33
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 2
30-39 years 2
40-49 years 3
50-59 years 3
60-69 years 6
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 43
Female 55

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 42
Not Diagnosed 13

These charts show data from normal pressure hydrocephalus patients who have completed their condition history
Last updated: