Essential myoclonus

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is essential myoclonus?

Myoclonus refers to sudden, brief, shock-like movements. Type of myoclonus depends on the underlying cause or type of movements. When there is no known cause or when it is a familial (inherited) condition it is called Essential myoclonus.

Common symptoms reported by people with essential myoclonus

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for essential myoclonus

Let’s build this page together! When you share what it’s like to have essential myoclonus through your profile, those stories and data appear here too.

Got a question about living with essential myoclonus? Members in the forum might have the answers.

Compare treatments taken by people with essential myoclonus

Let’s build this page together! When you share what it’s like to have essential myoclonus through your profile, those stories and data appear here too.

Got a question about living with essential myoclonus? Members in the forum might have the answers.

Who has essential myoclonus on PatientsLikeMe?

  • 0 new patients joined this month
  • 42 say essential myoclonus is their primary condition

Age
Age Proportion # of patients
<20 1
20s 12
30s 12
40s 11
50s 19
60s 23
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 11
20-29 years 8
30-39 years 9
40-49 years 9
50-59 years 10
60-69 years 1
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 20
Female 68

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 55
Not Diagnosed 8

These charts show data from essential myoclonus patients who have completed their condition history
Last updated: