Essential myoclonus
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is essential myoclonus?
Myoclonus refers to sudden, brief, shock-like movements. Type of myoclonus depends on the underlying cause or type of movements. When there is no known cause or when it is a familial (inherited) condition it is called Essential myoclonus.
Common symptoms reported by people with essential myoclonus
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with essential myoclonus
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Neuromuscular Electrical Stimulation
(TENS Transcutaneous Electrical Nerve Stimulation)
Type
Procedures
How many have tried
2
Tried for
pain
(2)
Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with essential myoclonus
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for essential myoclonus (2 evaluations)
Side effects
drowsy in morning
Total evaluations
3
Tried for
essential myoclonus
(3)
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(2)
Treatment name(s)
Neuromuscular Electrical Stimulation
(TENS Transcutaneous Electrical Nerve Stimulation)
Perceived effectiveness
for pain (2 evaluations)
Side effects
dizziness
Total evaluations
2
Tried for
pain
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Perceived effectiveness
for essential myoclonus (17 evaluations)
Side effects
Total evaluations
17
Tried for
essential myoclonus
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
Last updated:
Who has essential myoclonus on PatientsLikeMe?
- 90 patients have this condition
- 0 new patients joined this month
- 38 say essential myoclonus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 12 | |
| 30s | 10 | |
| 40s | 17 | |
| 50s | 15 | |
| 60s | 23 | |
| 70+ | 6 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 11 | |
| 20-29 years | 8 | |
| 30-39 years | 9 | |
| 40-49 years | 10 | |
| 50-59 years | 10 | |
| 60-69 years | 1 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 19 | |
| Female | 67 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 57 | |
| Not Diagnosed | 8 |
These charts show data from essential myoclonus patients who have completed their condition history
Last updated: