Essential myoclonus
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What is essential myoclonus?
Myoclonus refers to sudden, brief, shock-like movements. Type of myoclonus depends on the underlying cause or type of movements. When there is no known cause or when it is a familial (inherited) condition it is called Essential myoclonus.
Common symptoms reported by people with essential myoclonus
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with essential myoclonus
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Lofepramine
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood
(1)
Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with essential myoclonus
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for essential myoclonus (2 evaluations)
Side effects
drowsy in morning
Total evaluations
2
Tried for
essential myoclonus
(2)
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for essential myoclonus (17 evaluations)
Side effects
Total evaluations
17
Tried for
essential myoclonus
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
essential myoclonus
(1)
Treatment name(s)
Lofepramine
Perceived effectiveness
for depressed mood (17 evaluations)
Side effects
decreased appetite
weight loss
Total evaluations
17
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with essential myoclonus, who reported starting treatments within the last 5 years.
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Who has essential myoclonus on PatientsLikeMe?
- 94 patients have this condition
- 0 new patients joined this month
- 42 say essential myoclonus is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 12 | |
| 30s | 12 | |
| 40s | 15 | |
| 50s | 18 | |
| 60s | 24 | |
| 70+ | 6 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 11 | |
| 20-29 years | 8 | |
| 30-39 years | 9 | |
| 40-49 years | 10 | |
| 50-59 years | 10 | |
| 60-69 years | 1 | |
| 70+ years | 1 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 20 | |
| Female | 70 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 57 | |
| Not Diagnosed | 8 |
These charts show data from essential myoclonus patients who have completed their condition history
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