Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
74
Tried for
multiple myeloma (74)
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
41
Tried for
multiple myeloma (41)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
34
Tried for
multiple myeloma (34)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
33
Tried for
multiple myeloma (33)
Type
Prescription Drug
How many have tried
24
Tried for
multiple myeloma (24)
Type
Prescription Drug
How many have tried
24
Tried for
multiple myeloma (24)
Type
Prescription Drug
How many have tried
17
Tried for
multiple myeloma (17)
Treatment name(s)

(Kyprolis)
Type
Prescription Drug
How many have tried
13
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Type
Prescription Drug
How many have tried
13
Tried for
multiple myeloma (13)
Treatment name(s)
Type
Prescription Drug
How many have tried
12
Tried for
multiple myeloma (12)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (72 evaluations)
Side effects
diarrhea fatigue 48 more
Total evaluations
73
Tried for
multiple myeloma (74)
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (20 evaluations)
Side effects
Hospitalization diarrhea 12 more
Total evaluations
20
Tried for
multiple myeloma (41)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
fatigue neuropathy 12 more
Total evaluations
14
Tried for
multiple myeloma (34)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (24 evaluations)
Side effects
insomnia sleepiness 25 more
Total evaluations
24
Tried for
multiple myeloma (33)
Perceived effectiveness
for multiple myeloma (15 evaluations)
Side effects
constant tiredness fatigue 7 more
Total evaluations
15
Tried for
multiple myeloma (24)
Perceived effectiveness
for multiple myeloma (19 evaluations)
Side effects
fatigue constipation 12 more
Total evaluations
19
Tried for
multiple myeloma (24)
Perceived effectiveness
for multiple myeloma (10 evaluations)
Side effects
nausea chronic fatigue 13 more
Total evaluations
10
Tried for
multiple myeloma (17)
Treatment name(s)

(Kyprolis)
Perceived effectiveness
for multiple myeloma (11 evaluations)
Side effects
fatigue nausea 13 more
Total evaluations
11
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Perceived effectiveness
for multiple myeloma (8 evaluations)
Side effects
chills flushing 5 more
Total evaluations
8
Tried for
multiple myeloma (13)
Treatment name(s)
Perceived effectiveness
for multiple myeloma (6 evaluations)
Side effects
chronic constipation flu like symptoms on night of shot 4 more
Total evaluations
6
Tried for
multiple myeloma (12)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Who has multiple myeloma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 13
30s 74
40s 324
50s 1091
60s 1825
70+ 1576
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 7
30-39 years 61
40-49 years 180
50-59 years 281
60-69 years 269
70+ years 62

Distribution of sex

Sex
Sex Proportion # of patients
Male 1958
Female 3027

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3741
Not Diagnosed 293

These charts show data from multiple myeloma patients who have completed their condition history
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