Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Darzalex)
Type
Prescription Drug
How many have tried
60
Tried for
multiple myeloma (9)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
178
Tried for
multiple myeloma (3)
Treatment name(s)

(Kyprolis)
Type
Prescription Drug
How many have tried
127
Tried for
multiple myeloma (3)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
358
Tried for
multiple myeloma (3)
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
198
Tried for
multiple myeloma (3)
Type
Prescription Drug
How many have tried
2
Tried for
multiple myeloma (2)
Treatment name(s)

(Ninlaro)
Type
Prescription Drug
How many have tried
9
Tried for
multiple myeloma (2)
Treatment name(s)

(Pomalyst)
Type
Prescription Drug
How many have tried
102
Tried for
multiple myeloma (2)
Type
Prescription Drug
How many have tried
476
Tried for
multiple myeloma (1)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
multiple myeloma (1)

Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Darzalex)
Perceived effectiveness
for multiple myeloma (4 evaluations)
Side effects
Total evaluations
4
Tried for
multiple myeloma (9)
Treatment name(s)

(Velcade)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma (3)
Treatment name(s)

(Kyprolis)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Side effects
nausea anemia of chronic disease 8 more
Total evaluations
5
Tried for
multiple myeloma (3)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (2 evaluations)
Side effects
heartburn hiccups (hiccoughs)
Total evaluations
2
Tried for
multiple myeloma (3)
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (2 evaluations)
Side effects
Total evaluations
2
Tried for
multiple myeloma (3)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Side effects
fatigue peripheral neuropathy 1 more
Total evaluations
5
Tried for
multiple myeloma (2)
Treatment name(s)

(Ninlaro)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma (2)
Treatment name(s)

(Pomalyst)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma (2)
Perceived effectiveness
for multiple myeloma (1 evaluation)
Side effects
Total evaluations
1
Tried for
multiple myeloma (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:

Who has multiple myeloma on PatientsLikeMe?

  • 4 new patients joined this month
  • 5451 say multiple myeloma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 9
30s 66
40s 212
50s 839
60s 1712
70+ 2135
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 7
30-39 years 61
40-49 years 180
50-59 years 280
60-69 years 270
70+ years 62

Distribution of sex

Sex
Sex Proportion # of patients
Male 1998
Female 3058

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3777
Not Diagnosed 303

These charts show data from multiple myeloma patients who have completed their condition history
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