Multiple myeloma
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is multiple myeloma?
Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.
Common symptoms reported by people with multiple myeloma
Common symptoms
How bad it is
What people are taking for it
Common symptom
Generalized weakness (asthenia)
How bad it is
What people are taking for it
Nothing reported yet
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people for multiple myeloma
Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Daratumumab-lenalidomide-dexamethasone (DRd)
Type
Prescription Drug
How many have tried
2
Tried for
multiple myeloma
(2)
Treatment name(s)
Bortezomib-cyclophosphamide-dexamethasone (VCd or CyBorD)
Type
Prescription Drug
How many have tried
476
Tried for
multiple myeloma
(1)
Treatment name(s)
Carfilzomib-dexamethasone
Type
Prescription Drug
How many have tried
1
Tried for
multiple myeloma
(1)
Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:
Compare treatments taken by people with multiple myeloma
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for multiple myeloma (4 evaluations)
Side effects
Total evaluations
4
Tried for
multiple myeloma
(9)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma
(3)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Total evaluations
5
Tried for
multiple myeloma
(3)
Perceived effectiveness
for multiple myeloma (2 evaluations)
Side effects
heartburn
hiccups (hiccoughs)
Total evaluations
2
Tried for
multiple myeloma
(3)
Perceived effectiveness
for multiple myeloma (2 evaluations)
Side effects
Total evaluations
2
Tried for
multiple myeloma
(3)
Treatment name(s)
Daratumumab-lenalidomide-dexamethasone (DRd)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Total evaluations
5
Tried for
multiple myeloma
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma
(2)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma
(2)
Treatment name(s)
Bortezomib-cyclophosphamide-dexamethasone (VCd or CyBorD)
Perceived effectiveness
for multiple myeloma (1 evaluation)
Side effects
Total evaluations
1
Tried for
multiple myeloma
(1)
Treatment name(s)
Carfilzomib-dexamethasone
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
multiple myeloma
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:
Who has multiple myeloma on PatientsLikeMe?
- 4 new patients joined this month
- 5451 say multiple myeloma is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 0 | |
| 20s | 9 | |
| 30s | 66 | |
| 40s | 212 | |
| 50s | 839 | |
| 60s | 1712 | |
| 70+ | 2135 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 7 | |
| 30-39 years | 61 | |
| 40-49 years | 180 | |
| 50-59 years | 280 | |
| 60-69 years | 270 | |
| 70+ years | 62 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1998 | |
| Female | 3058 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 3777 | |
| Not Diagnosed | 303 |
These charts show data from multiple myeloma patients who have completed their condition history
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