Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
182
Tried for
multiple myeloma (53)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
356
Tried for
multiple myeloma (27)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
165
Tried for
multiple myeloma (25)
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
1151
Tried for
multiple myeloma (23)
Type
Prescription Drug
How many have tried
475
Tried for
multiple myeloma (14)
Treatment name(s)

(Kyprolis)
Type
Prescription Drug
How many have tried
124
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Type
Prescription Drug
How many have tried
50
Tried for
multiple myeloma (13)
Type
Prescription Drug
How many have tried
446
Tried for
multiple myeloma (11)
Type
Prescription Drug
How many have tried
474
Tried for
multiple myeloma (10)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
22
Tried for
multiple myeloma (9)

Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
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Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (37 evaluations)
Side effects
diarrhea fatigue 29 more
Total evaluations
38
Tried for
multiple myeloma (53)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (20 evaluations)
Side effects
insomnia abdominal bloating 21 more
Total evaluations
20
Tried for
multiple myeloma (27)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (6 evaluations)
Side effects
fatigue chronic constipation 4 more
Total evaluations
6
Tried for
multiple myeloma (25)
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (13 evaluations)
Side effects
Hospitalization diarrhea 8 more
Total evaluations
13
Tried for
multiple myeloma (23)
Perceived effectiveness
for multiple myeloma (12 evaluations)
Side effects
fatigue constipation 10 more
Total evaluations
12
Tried for
multiple myeloma (14)
Treatment name(s)

(Kyprolis)
Perceived effectiveness
for multiple myeloma (11 evaluations)
Side effects
fatigue nausea 13 more
Total evaluations
11
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Perceived effectiveness
for multiple myeloma (8 evaluations)
Side effects
chills flushing 5 more
Total evaluations
8
Tried for
multiple myeloma (13)
Perceived effectiveness
for multiple myeloma (9 evaluations)
Side effects
nausea chronic fatigue 12 more
Total evaluations
9
Tried for
multiple myeloma (11)
Perceived effectiveness
for multiple myeloma (6 evaluations)
Side effects
constant tiredness change in taste 3 more
Total evaluations
6
Tried for
multiple myeloma (10)
Treatment name(s)

(Zometa)
Perceived effectiveness
for multiple myeloma (6 evaluations)
Side effects
muscle pain nerve pain (neuralgia) 1 more
Total evaluations
6
Tried for
multiple myeloma (9)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who have ever reported treatments, ordered by their reporting frequency during the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:

Who has multiple myeloma on PatientsLikeMe?

  • 2 new patients joined this month
  • 5387 say multiple myeloma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 12
30s 65
40s 286
50s 1014
60s 1798
70+ 1745
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 7
30-39 years 61
40-49 years 180
50-59 years 281
60-69 years 268
70+ years 62

Distribution of sex

Sex
Sex Proportion # of patients
Male 1968
Female 3034

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3748
Not Diagnosed 295

These charts show data from multiple myeloma patients who have completed their condition history
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