Multiple myeloma

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is multiple myeloma?

Multiple myeloma is a bone marrow-based cancer that arises in plasma cells, a type of white blood cells that produce proteins that help the body fight infections (known as antibodies). Multiple myeloma occurs when plasma cells become abnormal and begin to divide and reproduce in an uncontrolled way.

Common symptoms reported by people with multiple myeloma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with multiple myeloma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Revlimid)
Type
Prescription Drug
How many have tried
60
Tried for
multiple myeloma (60)
Treatment name(s)

(Velcade)
Type
Prescription Drug
How many have tried
27
Tried for
multiple myeloma (27)
Treatment name(s)

(Decadron)
Type
Prescription Drug
How many have tried
27
Tried for
multiple myeloma (27)
Treatment name(s)

(Autologous Stem Cell Transplant)
Type
Procedures
How many have tried
26
Tried for
multiple myeloma (26)
Type
Prescription Drug
How many have tried
14
Tried for
multiple myeloma (14)
Treatment name(s)

(Kyprolis)
Type
Prescription Drug
How many have tried
13
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Type
Prescription Drug
How many have tried
13
Tried for
multiple myeloma (13)
Type
Prescription Drug
How many have tried
12
Tried for
multiple myeloma (12)
Type
Prescription Drug
How many have tried
11
Tried for
multiple myeloma (11)
Treatment name(s)

(Zometa)
Type
Prescription Drug
How many have tried
10
Tried for
multiple myeloma (9) bone pain (1)

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:

Compare treatments taken by people with multiple myeloma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Revlimid)
Perceived effectiveness
for multiple myeloma (45 evaluations)
Side effects
diarrhea fatigue 37 more
Total evaluations
46
Tried for
multiple myeloma (60)
Treatment name(s)

(Velcade)
Perceived effectiveness
for multiple myeloma (8 evaluations)
Side effects
fatigue chronic constipation 6 more
Total evaluations
8
Tried for
multiple myeloma (27)
Treatment name(s)

(Decadron)
Perceived effectiveness
for multiple myeloma (20 evaluations)
Side effects
insomnia abdominal bloating 21 more
Total evaluations
20
Tried for
multiple myeloma (27)
Treatment name(s)

(Autologous Stem Cell Transplant)
Perceived effectiveness
for multiple myeloma (14 evaluations)
Side effects
Hospitalization diarrhea 8 more
Total evaluations
14
Tried for
multiple myeloma (26)
Perceived effectiveness
for multiple myeloma (12 evaluations)
Side effects
fatigue constipation 10 more
Total evaluations
12
Tried for
multiple myeloma (14)
Treatment name(s)

(Kyprolis)
Perceived effectiveness
for multiple myeloma (11 evaluations)
Side effects
fatigue nausea 13 more
Total evaluations
11
Tried for
multiple myeloma (13)
Treatment name(s)

(Darzalex)
Perceived effectiveness
for multiple myeloma (8 evaluations)
Side effects
chills flushing 5 more
Total evaluations
8
Tried for
multiple myeloma (13)
Perceived effectiveness
for multiple myeloma (9 evaluations)
Side effects
constant tiredness change in taste 4 more
Total evaluations
9
Tried for
multiple myeloma (12)
Perceived effectiveness
for multiple myeloma (9 evaluations)
Side effects
nausea chronic fatigue 12 more
Total evaluations
9
Tried for
multiple myeloma (11)
Treatment name(s)

(Zometa)
Perceived effectiveness
for multiple myeloma (5 evaluations)
Side effects
muscle pain nerve pain (neuralgia)
Total evaluations
5
Tried for
multiple myeloma (9) bone pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with multiple myeloma, who reported starting treatments within the last 5 years. Filters for M Protein (blood) show results within 90 days of the treatment start date.
Last updated:

Who has multiple myeloma on PatientsLikeMe?

  • 1 new patients joined this month
  • 5379 say multiple myeloma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 11
30s 71
40s 304
50s 1045
60s 1813
70+ 1669
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 7
30-39 years 61
40-49 years 180
50-59 years 281
60-69 years 269
70+ years 62

Distribution of sex

Sex
Sex Proportion # of patients
Male 1964
Female 3031

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3744
Not Diagnosed 293

These charts show data from multiple myeloma patients who have completed their condition history
Last updated: