Myelodysplastic syndrome

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What is myelodysplastic syndrome?

Myelodysplastic syndrome describes a group of blood disorders characterized by ineffective production of certain blood cells within the bone marrow often leading to anemia. It has been called preleukemia because it may transform to acute myelogenous leukemia.

Common symptoms reported by people with myelodysplastic syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for myelodysplastic syndrome

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Procrit)
Type
Prescription Drug
How many have tried
23
Tried for
myelodysplastic syndrome (1)

Data from patients with myelodysplastic syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with myelodysplastic syndrome

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Procrit)
Perceived effectiveness
for myelodysplastic syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
myelodysplastic syndrome (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with myelodysplastic syndrome, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has myelodysplastic syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 97 say myelodysplastic syndrome is their primary condition

Age
Age Proportion # of patients
<20 1
20s 2
30s 4
40s 5
50s 18
60s 40
70+ 58
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 0
30-39 years 3
40-49 years 3
50-59 years 9
60-69 years 8
70+ years 6

Distribution of sex

Sex
Sex Proportion # of patients
Male 64
Female 66

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49
Not Diagnosed 4

These charts show data from myelodysplastic syndrome patients who have completed their condition history
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