Myelodysplastic syndrome
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What is myelodysplastic syndrome?
Myelodysplastic syndrome describes a group of blood disorders characterized by ineffective production of certain blood cells within the bone marrow often leading to anemia. It has been called preleukemia because it may transform to acute myelogenous leukemia.
Common symptoms reported by people with myelodysplastic syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with myelodysplastic syndrome
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with myelodysplastic syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with myelodysplastic syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for myelodysplastic syndrome (1 evaluation)
Side effects
Total evaluations
1
Tried for
myelodysplastic syndrome
(2)
Perceived effectiveness
for myelodysplastic syndrome (1 evaluation)
Side effects
very low white blood cell count
Total evaluations
1
Tried for
myelodysplastic syndrome
(1)
Perceived effectiveness
for depressed mood (8 evaluations)
Side effects
Total evaluations
8
Tried for
depressed mood
(1)
Perceived effectiveness
for pain (24 evaluations)
Side effects
excessive daytime sleepiness (somnolence)
Total evaluations
24
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
myelodysplastic syndrome
(1)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with myelodysplastic syndrome, who reported starting treatments within the last 5 years.
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Who has myelodysplastic syndrome on PatientsLikeMe?
- 134 patients have this condition
- 1 new patients joined this month
- 95 say myelodysplastic syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 2 | |
| 30s | 5 | |
| 40s | 7 | |
| 50s | 17 | |
| 60s | 39 | |
| 70+ | 54 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 1 | |
| 20-29 years | 0 | |
| 30-39 years | 3 | |
| 40-49 years | 3 | |
| 50-59 years | 9 | |
| 60-69 years | 7 | |
| 70+ years | 6 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 61 | |
| Female | 66 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 47 | |
| Not Diagnosed | 4 |
These charts show data from myelodysplastic syndrome patients who have completed their condition history
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