Muscular dystrophy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is muscular dystrophy?

Muscular dystrophy (MD) refers to a group of more than 30 inherited diseases that cause muscle weakness and muscle loss. Some forms of MD appear in infancy or childhood, while others may not appear until middle age or later.

Common symptoms reported by people with muscular dystrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for muscular dystrophy

Let’s build this page together! When you share what it’s like to have muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with muscular dystrophy? Members in the forum might have the answers.

Compare treatments taken by people with muscular dystrophy

Let’s build this page together! When you share what it’s like to have muscular dystrophy through your profile, those stories and data appear here too.

Got a question about living with muscular dystrophy? Members in the forum might have the answers.

Who has muscular dystrophy on PatientsLikeMe?

  • 0 new patients joined this month
  • 61 say muscular dystrophy is their primary condition

Age
Age Proportion # of patients
<20 4
20s 4
30s 23
40s 17
50s 12
60s 10
70+ 8
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 13
20-29 years 3
30-39 years 3
40-49 years 1
50-59 years 3
60-69 years 0
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 21
Female 58

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 31
Not Diagnosed 3

These charts show data from muscular dystrophy patients who have completed their condition history
Last updated: