3-Methylglutaconic Aciduria
We’re all in this for good.
- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is 3-Methylglutaconic Aciduria?
3-Methylglutaconic Aciduria refers to a group of five rare, different conditions that affect the body's mitochondria. Causes, symptoms, and treatment of the five different types of 3MGA vary, but all types of 3MGA can result in a build-up of harmful amounts of organic acids and toxins in the body.
Common symptoms reported by people with 3-Methylglutaconic Aciduria
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:
Treatments taken by people with 3-Methylglutaconic Aciduria
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with 3-Methylglutaconic Aciduria, who reported starting treatments within the last 5 years.
Last updated:
Compare treatments taken by people with 3-Methylglutaconic Aciduria
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for pain (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
3-Methylglutaconic Aciduria
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with 3-Methylglutaconic Aciduria, who reported starting treatments within the last 5 years.
Last updated:
Who has 3-Methylglutaconic Aciduria on PatientsLikeMe?
- 4 patients have this condition
- 0 new patients joined this month
- 2 say 3-Methylglutaconic Aciduria is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 1 | |
| 30s | 1 | |
| 40s | 1 | |
| 50s | 0 | |
| 60s | 0 | |
| 70+ | 0 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 2 | |
| 20-29 years | 0 | |
| 30-39 years | 0 | |
| 40-49 years | 0 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 1 | |
| Female | 3 |
| Condition Types | Proportion | # of patients |
|---|---|---|
| 3-methylglutaconic aciduria type 1 | 3 | |
| 3-methylglutaconic aciduria type 2 | 0 | |
| 3-methylglutaconic aciduria type 3 | 0 | |
| 3-methylglutaconic aciduria type 4 | 0 | |
| 3-methylglutaconic aciduria type 5 | 0 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 1 | |
| Not Diagnosed | 1 |
These charts show data from 3-Methylglutaconic Aciduria patients who have completed their condition history
Last updated:
Let’s build this page together! When you share what it’s like to have 3-Methylglutaconic Aciduria through your profile, those stories and data appear here too.
Got a question about living with 3-Methylglutaconic Aciduria? Members in the forum might have the answers.