Meningioma

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is meningioma?

Meningiomas are tumors of the meninges, the surface coverings of the central nervous system (brain and spinal). The cell of origin for the meningioma is the arachnoid cap cell. Meningiomas are usually non cancerous (benign).

Common symptoms reported by people with meningioma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with meningioma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Right frontal craniotomy)
Type
Surgery
How many have tried
1
Tried for
meningioma (1)
Treatment name(s)

(Pill Organizer)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Morphine ER)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Embeda)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Image Guided Radiation)
Type
Procedures
How many have tried
1
Tried for
meningioma (1)

Data from patients with meningioma, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with meningioma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Symmetrel)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
Treatment name(s)

(Right frontal craniotomy)
Perceived effectiveness
for meningioma (1 evaluation)
Side effects
headaches
Total evaluations
1
Tried for
meningioma (1)
Treatment name(s)

(Pill Organizer)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Morphine ER)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Embeda)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Image Guided Radiation)
Perceived effectiveness
for meningioma (2 evaluations)
Side effects
exhaustion toxic encephalopathy
Total evaluations
2
Tried for
meningioma (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with meningioma, who reported starting treatments within the last 5 years.
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Who has meningioma on PatientsLikeMe?

  • 0 new patients joined this month
  • 143 say meningioma is their primary condition

Age
Age Proportion # of patients
<20 0
20s 1
30s 18
40s 44
50s 78
60s 65
70+ 24
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 0
20-29 years 4
30-39 years 11
40-49 years 19
50-59 years 8
60-69 years 4
70+ years 2

Distribution of sex

Sex
Sex Proportion # of patients
Male 35
Female 203

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 176
Not Diagnosed 5

These charts show data from meningioma patients who have completed their condition history
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