What is interstitial lung disease?

Interstitial lung disease is the name for a large group of diseases that inflame or scar the lungs. The inflammation and scarring make it hard to get enough oxygen. The scarring is called pulmonary fibrosis. Some types of interstitial lung disease have no known cause.

How do members experience interstitial lung disease?

Top 5 symptoms reported by people with interstitial lung disease*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for interstitial lung disease*

*Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with interstitial lung disease*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Prednisone Intensol)
Perceived effectiveness
for interstitial lung disease (1 evaluation)
Side effects
acne weight gain
Total evaluations
1
Tried for
interstitial lung disease (3)
Treatment

(transtracheal oxygen)
Perceived effectiveness
for interstitial lung disease (2 evaluations)
Side effects
dry nasal passages
Total evaluations
2
Tried for
interstitial lung disease (2)

*Data from patients with interstitial lung disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has interstitial lung disease on PatientsLikeMe?

Age

Age Proportion # of patients
<20 3
20s 9
30s 21
40s 75
50s 120
60s 198
70+ 217

Distribution of sex

Sex

Sex Proportion # of patients
Male 170
Female 474