Idiopathic hypersomnia

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What is idiopathic hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with idiopathic hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for idiopathic hypersomnia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
144
Tried for
idiopathic hypersomnia (7)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
100
Tried for
idiopathic hypersomnia (6)

Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with idiopathic hypersomnia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Provigil)
Perceived effectiveness
for idiopathic hypersomnia (5 evaluations)
Side effects
breast soreness excessive yawning 3 more
Total evaluations
5
Tried for
idiopathic hypersomnia (7)
Treatment name(s)

(Ritalin)
Perceived effectiveness
for idiopathic hypersomnia (5 evaluations)
Side effects
decreased appetite major depressive disorder 1 more
Total evaluations
5
Tried for
idiopathic hypersomnia (6)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic hypersomnia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has idiopathic hypersomnia on PatientsLikeMe?

  • 2 new patients joined this month
  • 234 say idiopathic hypersomnia is their primary condition

Age
Age Proportion # of patients
<20 0
20s 42
30s 131
40s 117
50s 110
60s 43
70+ 13
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 90
20-29 years 46
30-39 years 35
40-49 years 19
50-59 years 14
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 78
Female 386

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 245
Not Diagnosed 27

These charts show data from idiopathic hypersomnia patients who have completed their condition history
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