Idiopathic hypersomnia

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What is idiopathic hypersomnia?

Idiopathic Hypersomnia, also known as major somnolence disorder, is a sleep disorder characterized by excessive amounts of sleepiness for which there is no identifiable cause.

Common symptoms reported by people with idiopathic hypersomnia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with idiopathic hypersomnia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
20
Tried for
idiopathic hypersomnia (13) fatigue (10)
Treatment name(s)

(Provigil)
Type
Prescription Drug
How many have tried
15
Tried for
idiopathic hypersomnia (15) fatigue (1)
Treatment name(s)

(Ritalin)
Type
Prescription Drug
How many have tried
14
Tried for
idiopathic hypersomnia (13) fatigue (4)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
11
Tried for
idiopathic hypersomnia (10) fatigue (3)
Treatment name(s)

(Vistaril)
Type
Prescription Drug
How many have tried
7
Tried for
anxious mood (7)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (4) anxious mood (2)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (2) pain (2)
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Lidocaine Infusion)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3) anxious mood (1)
2 more

Data from patients with idiopathic hypersomnia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with idiopathic hypersomnia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Adderall)
Perceived effectiveness
for idiopathic hypersomnia (9 evaluations)
Side effects
dry mouth shakiness 9 more
Total evaluations
16
Tried for
idiopathic hypersomnia (13) fatigue (10)
Treatment name(s)

(Provigil)
Perceived effectiveness
for idiopathic hypersomnia (7 evaluations)
Side effects
breast soreness excessive yawning 4 more
Total evaluations
7
Tried for
idiopathic hypersomnia (15) fatigue (1)
Treatment name(s)

(Ritalin)
Perceived effectiveness
for idiopathic hypersomnia (6 evaluations)
Side effects
decreased appetite anxious mood 3 more
Total evaluations
7
Tried for
idiopathic hypersomnia (13) fatigue (4)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for idiopathic hypersomnia (4 evaluations)
Side effects
decreased appetite Stevens Johnson syndrome
Total evaluations
9
Tried for
idiopathic hypersomnia (10) fatigue (3)
Treatment name(s)

(Vistaril)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
decreased appetite drowsiness 2 more
Total evaluations
4
Tried for
anxious mood (7)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
decreased sex drive (libido) sleepiness
Total evaluations
2
Tried for
depressed mood (4) anxious mood (2)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
fatigue hypomania 1 more
Total evaluations
3
Tried for
anxious mood (2) pain (2)
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
weight gain
Total evaluations
5
Tried for
depressed mood (3) anxious mood (1)
Treatment name(s)

(Lidocaine Infusion)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (5 evaluations)
Side effects
brain fog feel very relaxed 4 more
Total evaluations
5
Tried for
pain (3) anxious mood (1)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with idiopathic hypersomnia, who reported starting treatments within the last 5 years.
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Who has idiopathic hypersomnia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 54
30s 126
40s 120
50s 91
60s 29
70+ 11
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 90
20-29 years 45
30-39 years 35
40-49 years 20
50-59 years 14
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 73
Female 365

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 241
Not Diagnosed 25

These charts show data from idiopathic hypersomnia patients who have completed their condition history
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