What is hidradenitis suppurativa?

Hidradenitis suppurativa chronic inflammatory skin disorder that primarily affects the underarm, groin, perineum, and area under the breasts. As the disease becomes chronic, ulcers appear, sinus tracts enlarge, fistulas develop, and fibrosis and scarring become evident.

How do members experience hidradenitis suppurativa?

Top 5 symptoms reported by people with hidradenitis suppurativa*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for hidradenitis suppurativa*

*Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with hidradenitis suppurativa*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Doxylin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (3)
Treatment

(Clindamycin PH 1% Gel)
Perceived effectiveness
for hidradenitis suppurativa (1 evaluation)
Side effects
Total evaluations
1
Tried for
hidradenitis suppurativa (1)
Treatment

(Ibuprofen Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)
Treatment

(Remicade)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (1)

*Data from patients with hidradenitis suppurativa, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has hidradenitis suppurativa on PatientsLikeMe?

Age

Age Proportion # of patients
<20 1
20s 41
30s 127
40s 164
50s 117
60s 52
70+ 16

Distribution of sex

Sex

Sex Proportion # of patients
Male 67
Female 453