Hidradenitis suppurativa

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What is hidradenitis suppurativa?

Hidradenitis suppurativa chronic inflammatory skin disorder that primarily affects the underarm, groin, perineum, and area under the breasts. As the disease becomes chronic, ulcers appear, sinus tracts enlarge, fistulas develop, and fibrosis and scarring become evident.

Common symptoms reported by people with hidradenitis suppurativa

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with hidradenitis suppurativa

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clindamycin PH 1% Gel)
Type
Prescription Drug
How many have tried
5
Tried for
hidradenitis suppurativa (5)
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
5
Tried for
hidradenitis suppurativa (5)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
5
Tried for
pain (4) hidradenitis suppurativa (1)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
4
Tried for
hidradenitis suppurativa (4)
Treatment name(s)

(Tylenol)
Type
Over the Counter Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Dalacin T)
Type
Prescription Drug
How many have tried
3
Tried for
hidradenitis suppurativa (3)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) anxious mood (1)
1 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)

Data from patients with hidradenitis suppurativa, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with hidradenitis suppurativa

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Clindamycin PH 1% Gel)
Perceived effectiveness
for hidradenitis suppurativa (4 evaluations)
Side effects
aftertaste
Total evaluations
4
Tried for
hidradenitis suppurativa (5)
Treatment name(s)

(Doxylin)
Perceived effectiveness
for hidradenitis suppurativa (4 evaluations)
Side effects
upset stomach mouth sores (ulcers) 2 more
Total evaluations
4
Tried for
hidradenitis suppurativa (5)
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (8 evaluations)
Side effects
chronic constipation sleepiness
Total evaluations
8
Tried for
pain (4) hidradenitis suppurativa (1)
Treatment name(s)

(Humira)
Perceived effectiveness
for hidradenitis suppurativa (2 evaluations)
Side effects
sebaceous cyst
Total evaluations
2
Tried for
hidradenitis suppurativa (4)
Treatment name(s)

(Tylenol)
Perceived effectiveness
for pain (2 evaluations)
Side effects
Total evaluations
2
Tried for
pain (3)
Treatment name(s)

(Elavil)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blurry vision fibromyalgia
Total evaluations
1
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Dalacin T)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
hidradenitis suppurativa (3)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
daytime sleepiness dizziness 1 more
Total evaluations
5
Tried for
depressed mood (2) anxious mood (1)
1 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
sinus tachycardia
Total evaluations
2
Tried for
fatigue (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with hidradenitis suppurativa, who reported starting treatments within the last 5 years.
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Who has hidradenitis suppurativa on PatientsLikeMe?

  • 0 new patients joined this month
  • 194 say hidradenitis suppurativa is their primary condition

Age
Age Proportion # of patients
<20 3
20s 47
30s 113
40s 143
50s 75
60s 35
70+ 5
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 95
20-29 years 64
30-39 years 33
40-49 years 16
50-59 years 3
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 57
Female 370

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 235
Not Diagnosed 24

These charts show data from hidradenitis suppurativa patients who have completed their condition history
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