Non-celiac gluten intolerance

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What is non-celiac gluten intolerance?

Gluten intolerance refers to digestive issues in which gluten is not able to be properly absorbed and may damage the the lining of the small intestine. It is a characteristic of Celiac Disease and is known as Non-Celiac Gluten Sensitivity in patients who do not have Celiac Disease.

Common symptoms reported by people with non-celiac gluten intolerance

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Type
Nutrition/Diet
How many have tried
14
Tried for
non-celiac gluten intolerance (14) pain (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
3
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Pamelor)
Type
Prescription Drug
How many have tried
3
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
3
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Manual fold up)
Type
Equipment
How many have tried
3
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Adderall)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (1) fatigue (1)
Treatment name(s)

(Nuvigil)
Type
Prescription Drug
How many have tried
2
Tried for
fatigue (2)

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with non-celiac gluten intolerance

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Burgen Gluten Free Bread)
Perceived effectiveness
for non-celiac gluten intolerance (6 evaluations)
Side effects
sudden blasts of hunger sweet cravings
Total evaluations
6
Tried for
non-celiac gluten intolerance (14) pain (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (4 evaluations)
Side effects
sleepiness
Total evaluations
4
Tried for
anxious mood (3)
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (1 evaluation)
Side effects
itching
Total evaluations
1
Tried for
pain (3)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (5 evaluations)
Side effects
feel very relaxed happiness 1 more
Total evaluations
5
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Pamelor)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (3) depressed mood (1)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
pain (2) anxious mood (1)
Treatment name(s)

(Manual fold up)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (3) pain (1)
Treatment name(s)

(Adderall)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
dry mouth
Total evaluations
1
Tried for
anxious mood (1) fatigue (1)
Treatment name(s)

(Nuvigil)
Perceived effectiveness
for fatigue (2 evaluations)
Side effects
headaches Stevens Johnson syndrome
Total evaluations
2
Tried for
fatigue (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with non-celiac gluten intolerance, who reported starting treatments within the last 5 years.
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Who has non-celiac gluten intolerance on PatientsLikeMe?


Age
Age Proportion # of patients
<20 4
20s 37
30s 109
40s 110
50s 105
60s 63
70+ 25
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 65
20-29 years 66
30-39 years 42
40-49 years 31
50-59 years 24
60-69 years 6
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 79
Female 372

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 194
Not Diagnosed 102

These charts show data from non-celiac gluten intolerance patients who have completed their condition history
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