Gilbert's syndrome
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is Gilbert's syndrome?
Gilbert's disease is a common disorder passed down through families. It affects the way bilirubin is processed by the liver, and is characterized by fatigue and yellowing of the skin and whites of eyes, which may come and go in response to stress, exertion and infections.
Common symptoms reported by people with Gilbert's syndrome
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Gilbert's syndrome
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with Gilbert's syndrome, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Gilbert's syndrome
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
sore mouth (stomatitis)
Total evaluations
1
Tried for
anxious mood
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
pain
(1)
Perceived effectiveness
for pain (2 evaluations)
Side effects
fatigue
pain
Total evaluations
2
Tried for
pain
(1)
Treatment name(s)
Paleolithic Diet
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain
(1)
Perceived effectiveness
for pain (1 evaluation)
Side effects
constipation
Total evaluations
1
Tried for
pain
(1)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood
(1)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with Gilbert's syndrome, who reported starting treatments within the last 5 years.
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Who has Gilbert's syndrome on PatientsLikeMe?
- 131 patients have this condition
- 2 new patients joined this month
- 67 say Gilbert's syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 26 | |
| 30s | 28 | |
| 40s | 29 | |
| 50s | 20 | |
| 60s | 12 | |
| 70+ | 3 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 14 | |
| 20-29 years | 16 | |
| 30-39 years | 7 | |
| 40-49 years | 2 | |
| 50-59 years | 2 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 66 | |
| Female | 58 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 61 | |
| Not Diagnosed | 3 |
These charts show data from Gilbert's syndrome patients who have completed their condition history
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