Gilbert's syndrome

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Gilbert's syndrome?

Gilbert's disease is a common disorder passed down through families. It affects the way bilirubin is processed by the liver, and is characterized by fatigue and yellowing of the skin and whites of eyes, which may come and go in response to stress, exertion and infections.

Common symptoms reported by people with Gilbert's syndrome

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Gilbert's syndrome

Let’s build this page together! When you share what it’s like to have Gilbert's syndrome through your profile, those stories and data appear here too.

Got a question about living with Gilbert's syndrome? Members in the forum might have the answers.

Compare treatments taken by people with Gilbert's syndrome

Let’s build this page together! When you share what it’s like to have Gilbert's syndrome through your profile, those stories and data appear here too.

Got a question about living with Gilbert's syndrome? Members in the forum might have the answers.

Who has Gilbert's syndrome on PatientsLikeMe?

  • 0 new patients joined this month
  • 77 say Gilbert's syndrome is their primary condition

Age
Age Proportion # of patients
<20 0
20s 29
30s 33
40s 32
50s 18
60s 18
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 14
20-29 years 19
30-39 years 7
40-49 years 2
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 69
Female 69

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 63
Not Diagnosed 3

These charts show data from Gilbert's syndrome patients who have completed their condition history
Last updated: