Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
950
Tried for
fibromyalgia (930) depressed mood (117)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
591
Tried for
fibromyalgia (553) pain (151)
4 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
544
Tried for
fibromyalgia (532) pain (77)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
231
Tried for
pain (140) fibromyalgia (139)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
149
Tried for
fibromyalgia (113) pain (75)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
137
Tried for
fibromyalgia (112) pain (51)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
107
Tried for
pain (88) fibromyalgia (54)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
87
Tried for
fibromyalgia (56) pain (46)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
74
Tried for
fibromyalgia (71) fatigue (17)
3 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
71
Tried for
fibromyalgia (69) muscle pain (3)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (570 evaluations)
Side effects
weight gain nausea 198 more
Total evaluations
606
Tried for
fibromyalgia (930) depressed mood (117)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (326 evaluations)
Side effects
weight gain dizziness 136 more
Total evaluations
360
Tried for
fibromyalgia (553) pain (151)
4 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (321 evaluations)
Side effects
weight gain dizziness 124 more
Total evaluations
334
Tried for
fibromyalgia (532) pain (77)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (74 evaluations)
Side effects
nausea sleepiness 29 more
Total evaluations
153
Tried for
pain (140) fibromyalgia (139)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (65 evaluations)
Side effects
drowsiness sleepiness 27 more
Total evaluations
94
Tried for
fibromyalgia (113) pain (75)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (73 evaluations)
Side effects
dry mouth weight gain 38 more
Total evaluations
96
Tried for
fibromyalgia (112) pain (51)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (48 evaluations)
Side effects
constipation drowsiness 16 more
Total evaluations
58
Tried for
pain (88) fibromyalgia (54)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (28 evaluations)
Side effects
nausea stomach pain 23 more
Total evaluations
54
Tried for
fibromyalgia (56) pain (46)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (74 evaluations)
Side effects
vivid dreams insomnia 26 more
Total evaluations
76
Tried for
fibromyalgia (71) fatigue (17)
3 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (35 evaluations)
Side effects
drowsiness sleepiness 13 more
Total evaluations
38
Tried for
fibromyalgia (69) muscle pain (3)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 62
20s 1667
30s 8262
40s 25027
50s 38118
60s 26866
70+ 6947
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6324
20-29 years 9410
30-39 years 13452
40-49 years 9997
50-59 years 3502
60-69 years 498
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3898
Female 103671

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49105
Not Diagnosed 2987

These charts show data from fibromyalgia patients who have completed their condition history
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