Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1241
Tried for
fibromyalgia (1215) depressed mood (158)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
776
Tried for
fibromyalgia (719) pain (219)
6 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
771
Tried for
fibromyalgia (751) pain (114)
5 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
349
Tried for
pain (222) fibromyalgia (199)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
223
Tried for
fibromyalgia (178) pain (105)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
195
Tried for
fibromyalgia (153) pain (102)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
155
Tried for
pain (124) fibromyalgia (91)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
117
Tried for
fibromyalgia (77) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
103
Tried for
fibromyalgia (99) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
96
Tried for
depressed mood (65) fibromyalgia (31)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (719 evaluations)
Side effects
weight gain nausea 220 more
Total evaluations
757
Tried for
fibromyalgia (1215) depressed mood (158)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (424 evaluations)
Side effects
weight gain drowsiness 153 more
Total evaluations
474
Tried for
fibromyalgia (719) pain (219)
6 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (425 evaluations)
Side effects
weight gain brain fog 163 more
Total evaluations
447
Tried for
fibromyalgia (751) pain (114)
5 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (107 evaluations)
Side effects
drowsiness nausea 50 more
Total evaluations
200
Tried for
pain (222) fibromyalgia (199)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (141 evaluations)
Side effects
dry mouth weight gain 62 more
Total evaluations
199
Tried for
fibromyalgia (178) pain (105)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (93 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
131
Tried for
fibromyalgia (153) pain (102)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (66 evaluations)
Side effects
constipation drowsiness 24 more
Total evaluations
81
Tried for
pain (124) fibromyalgia (91)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (39 evaluations)
Side effects
nausea stomach pain 19 more
Total evaluations
66
Tried for
fibromyalgia (77) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 19 more
Total evaluations
49
Tried for
fibromyalgia (99) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (36 evaluations)
Side effects
anxious mood dizziness 57 more
Total evaluations
62
Tried for
depressed mood (65) fibromyalgia (31)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 69
20s 1874
30s 8791
40s 24677
50s 34820
60s 22728
70+ 5382
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6321
20-29 years 9401
30-39 years 13425
40-49 years 9968
50-59 years 3485
60-69 years 495
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3661
Female 95164

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48943
Not Diagnosed 2988

These charts show data from fibromyalgia patients who have completed their condition history
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