Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
44420
Tried for
fibromyalgia (640)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22467
Tried for
fibromyalgia (428)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
38230
Tried for
fibromyalgia (382)
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2055
Tried for
fibromyalgia (44)

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (395 evaluations)
Side effects
weight gain nausea 158 more
Total evaluations
409
Tried for
fibromyalgia (640)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (256 evaluations)
Side effects
dizziness drowsiness 109 more
Total evaluations
270
Tried for
fibromyalgia (428)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (239 evaluations)
Side effects
weight gain dizziness 104 more
Total evaluations
243
Tried for
fibromyalgia (382)
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (31 evaluations)
Side effects
nausea drowsiness 17 more
Total evaluations
31
Tried for
fibromyalgia (44)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?

  • 38 new patients joined this month
  • 98627 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 45
20s 1466
30s 7473
40s 23505
50s 37992
60s 28649
70+ 8036
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6331
20-29 years 9421
30-39 years 13452
40-49 years 10004
50-59 years 3512
60-69 years 498
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3915
Female 103873

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49149
Not Diagnosed 2988

These charts show data from fibromyalgia patients who have completed their condition history
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