Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
44430
Tried for
fibromyalgia (548)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22495
Tried for
fibromyalgia (378)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
38232
Tried for
fibromyalgia (334)
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2059
Tried for
fibromyalgia (37)

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (328 evaluations)
Side effects
nausea weight gain 139 more
Total evaluations
341
Tried for
fibromyalgia (548)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (214 evaluations)
Side effects
dizziness drowsiness 95 more
Total evaluations
226
Tried for
fibromyalgia (378)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (206 evaluations)
Side effects
weight gain dizziness 89 more
Total evaluations
210
Tried for
fibromyalgia (334)
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (23 evaluations)
Side effects
drowsiness excessive sweating 12 more
Total evaluations
23
Tried for
fibromyalgia (37)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?

  • 22 new patients joined this month
  • 98690 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 33
20s 1356
30s 7039
40s 22687
50s 37861
60s 29608
70+ 8671
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6330
20-29 years 9423
30-39 years 13455
40-49 years 9998
50-59 years 3510
60-69 years 497
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3930
Female 103950

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49148
Not Diagnosed 2986

These charts show data from fibromyalgia patients who have completed their condition history
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