Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
952
Tried for
fibromyalgia (931) depressed mood (119)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
589
Tried for
fibromyalgia (551) pain (154)
4 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
550
Tried for
fibromyalgia (538) pain (76)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
238
Tried for
pain (146) fibromyalgia (142)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
149
Tried for
fibromyalgia (114) pain (75)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
144
Tried for
fibromyalgia (115) pain (56)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
108
Tried for
pain (89) fibromyalgia (55)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
85
Tried for
fibromyalgia (56) pain (44)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
73
Tried for
fibromyalgia (70) fatigue (16)
3 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
71
Tried for
anxious mood (69) depressed mood (1)
1 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (570 evaluations)
Side effects
weight gain nausea 200 more
Total evaluations
606
Tried for
fibromyalgia (931) depressed mood (119)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (326 evaluations)
Side effects
weight gain dizziness 132 more
Total evaluations
360
Tried for
fibromyalgia (551) pain (154)
4 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (328 evaluations)
Side effects
weight gain dizziness 134 more
Total evaluations
340
Tried for
fibromyalgia (538) pain (76)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (76 evaluations)
Side effects
nausea sleepiness 30 more
Total evaluations
152
Tried for
pain (146) fibromyalgia (142)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (65 evaluations)
Side effects
drowsiness sleepiness 27 more
Total evaluations
93
Tried for
fibromyalgia (114) pain (75)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (77 evaluations)
Side effects
dry mouth weight gain 41 more
Total evaluations
107
Tried for
fibromyalgia (115) pain (56)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (48 evaluations)
Side effects
constipation drowsiness 16 more
Total evaluations
58
Tried for
pain (89) fibromyalgia (55)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (28 evaluations)
Side effects
nausea stomach pain 23 more
Total evaluations
53
Tried for
fibromyalgia (56) pain (44)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (73 evaluations)
Side effects
vivid dreams headaches 26 more
Total evaluations
75
Tried for
fibromyalgia (70) fatigue (16)
3 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (37 evaluations)
Side effects
sleepiness tiredness 8 more
Total evaluations
44
Tried for
anxious mood (69) depressed mood (1)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 65
20s 1682
30s 8258
40s 24722
50s 37127
60s 26002
70+ 6660
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6320
20-29 years 9404
30-39 years 13441
40-49 years 9987
50-59 years 3494
60-69 years 497
70+ years 67

Distribution of sex

Sex
Sex Proportion # of patients
Male 3855
Female 101249

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49057
Not Diagnosed 2986

These charts show data from fibromyalgia patients who have completed their condition history
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