Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1004
Tried for
fibromyalgia (983) depressed mood (124)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
622
Tried for
fibromyalgia (581) pain (167)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
611
Tried for
fibromyalgia (599) pain (88)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
262
Tried for
pain (161) fibromyalgia (156)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
181
Tried for
fibromyalgia (147) pain (80)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
164
Tried for
fibromyalgia (129) pain (83)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
124
Tried for
pain (98) fibromyalgia (69)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
98
Tried for
fibromyalgia (66) pain (55)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
78
Tried for
fibromyalgia (74) muscle pain (4)
2 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
76
Tried for
fibromyalgia (74) pain (15)
1 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (599 evaluations)
Side effects
weight gain nausea 197 more
Total evaluations
632
Tried for
fibromyalgia (983) depressed mood (124)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (351 evaluations)
Side effects
weight gain dizziness 137 more
Total evaluations
386
Tried for
fibromyalgia (581) pain (167)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (354 evaluations)
Side effects
weight gain dizziness 144 more
Total evaluations
367
Tried for
fibromyalgia (599) pain (88)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (84 evaluations)
Side effects
nausea sleepiness 36 more
Total evaluations
160
Tried for
pain (161) fibromyalgia (156)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (125 evaluations)
Side effects
dry mouth weight gain 53 more
Total evaluations
160
Tried for
fibromyalgia (147) pain (80)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (75 evaluations)
Side effects
drowsiness sleepiness 30 more
Total evaluations
107
Tried for
fibromyalgia (129) pain (83)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (51 evaluations)
Side effects
constipation drowsiness 19 more
Total evaluations
63
Tried for
pain (98) fibromyalgia (69)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (33 evaluations)
Side effects
nausea stomach pain 18 more
Total evaluations
58
Tried for
fibromyalgia (66) pain (55)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (39 evaluations)
Side effects
drowsiness sleepiness 15 more
Total evaluations
44
Tried for
fibromyalgia (74) muscle pain (4)
2 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
nausea insomnia 28 more
Total evaluations
47
Tried for
fibromyalgia (74) pain (15)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 58
20s 1760
30s 8410
40s 24152
50s 34742
60s 23577
70+ 5844
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6311
20-29 years 9378
30-39 years 13408
40-49 years 9965
50-59 years 3476
60-69 years 492
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3700
Female 95337

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48896
Not Diagnosed 2984

These charts show data from fibromyalgia patients who have completed their condition history
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