Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
44465
Tried for
fibromyalgia (135)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
22544
Tried for
fibromyalgia (127)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
38245
Tried for
fibromyalgia (76)
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
2068
Tried for
fibromyalgia (4)

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (73 evaluations)
Side effects
nausea dizziness 57 more
Total evaluations
77
Tried for
fibromyalgia (135)
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (74 evaluations)
Side effects
dizziness sleepiness 37 more
Total evaluations
76
Tried for
fibromyalgia (127)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (35 evaluations)
Side effects
dizziness dry mouth 10 more
Total evaluations
36
Tried for
fibromyalgia (76)
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (1 evaluation)
Side effects
Total evaluations
1
Tried for
fibromyalgia (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?

  • 30 new patients joined this month
  • 98837 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 17
20s 950
30s 5597
40s 19431
50s 36576
60s 33070
70+ 11979
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6331
20-29 years 9426
30-39 years 13448
40-49 years 10009
50-59 years 3519
60-69 years 498
70+ years 69

Distribution of sex

Sex
Sex Proportion # of patients
Male 3967
Female 104287

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49173
Not Diagnosed 2980

These charts show data from fibromyalgia patients who have completed their condition history
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