Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
962
Tried for
fibromyalgia (940) depressed mood (117)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
591
Tried for
fibromyalgia (550) pain (157)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
566
Tried for
fibromyalgia (554) pain (79)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
244
Tried for
fibromyalgia (147) pain (147)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
154
Tried for
fibromyalgia (120) pain (80)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
149
Tried for
fibromyalgia (119) pain (60)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
111
Tried for
pain (91) fibromyalgia (58)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
94
Tried for
fibromyalgia (64) pain (51)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
74
Tried for
fibromyalgia (71) muscle pain (4)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
73
Tried for
fibromyalgia (70) fatigue (16)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (567 evaluations)
Side effects
weight gain nausea 199 more
Total evaluations
601
Tried for
fibromyalgia (940) depressed mood (117)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (333 evaluations)
Side effects
weight gain drowsiness 131 more
Total evaluations
368
Tried for
fibromyalgia (550) pain (157)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (333 evaluations)
Side effects
weight gain dizziness 135 more
Total evaluations
345
Tried for
fibromyalgia (554) pain (79)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (85 evaluations)
Side effects
nausea sleepiness 34 more
Total evaluations
158
Tried for
fibromyalgia (147) pain (147)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (66 evaluations)
Side effects
drowsiness sleepiness 28 more
Total evaluations
94
Tried for
fibromyalgia (120) pain (80)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (83 evaluations)
Side effects
dry mouth weight gain 46 more
Total evaluations
113
Tried for
fibromyalgia (119) pain (60)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (48 evaluations)
Side effects
constipation drowsiness 16 more
Total evaluations
58
Tried for
pain (91) fibromyalgia (58)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (31 evaluations)
Side effects
nausea stomach pain 18 more
Total evaluations
55
Tried for
fibromyalgia (64) pain (51)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (36 evaluations)
Side effects
drowsiness sleepiness 14 more
Total evaluations
39
Tried for
fibromyalgia (71) muscle pain (4)
2 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (72 evaluations)
Side effects
vivid dreams headaches 27 more
Total evaluations
74
Tried for
fibromyalgia (70) fatigue (16)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 59
20s 1687
30s 8210
40s 24065
50s 35521
60s 24605
70+ 6279
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6315
20-29 years 9394
30-39 years 13423
40-49 years 9970
50-59 years 3486
60-69 years 494
70+ years 67

Distribution of sex

Sex
Sex Proportion # of patients
Male 3758
Female 97184

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48964
Not Diagnosed 2984

These charts show data from fibromyalgia patients who have completed their condition history
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