Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
689
Tried for
fibromyalgia (670) depressed mood (92)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
478
Tried for
fibromyalgia (447) pain (124)
4 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
415
Tried for
fibromyalgia (404) pain (60)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
163
Tried for
pain (98) fibromyalgia (97)
3 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
127
Tried for
fibromyalgia (94) pain (68)
4 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
109
Tried for
fibromyalgia (88) pain (35)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
77
Tried for
pain (64) fibromyalgia (36)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
69
Tried for
fibromyalgia (44) pain (37)
2 more
Treatment name(s)

(Cannabidiol CBD oil)
Type
Other
How many have tried
63
Tried for
pain (53) anxious mood (25)
7 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Type
Prescription Drug
How many have tried
61
Tried for
fibromyalgia (59) fatigue (13)
2 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (410 evaluations)
Side effects
weight gain nausea 166 more
Total evaluations
441
Tried for
fibromyalgia (670) depressed mood (92)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (270 evaluations)
Side effects
dizziness drowsiness 122 more
Total evaluations
301
Tried for
fibromyalgia (447) pain (124)
4 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (255 evaluations)
Side effects
weight gain dizziness 109 more
Total evaluations
268
Tried for
fibromyalgia (404) pain (60)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (59 evaluations)
Side effects
nausea sleepiness 23 more
Total evaluations
117
Tried for
pain (98) fibromyalgia (97)
3 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (56 evaluations)
Side effects
sleepiness drowsiness 25 more
Total evaluations
85
Tried for
fibromyalgia (94) pain (68)
4 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (57 evaluations)
Side effects
dry mouth weight gain 31 more
Total evaluations
75
Tried for
fibromyalgia (88) pain (35)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (35 evaluations)
Side effects
constipation drowsiness 11 more
Total evaluations
44
Tried for
pain (64) fibromyalgia (36)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (24 evaluations)
Side effects
nausea stomach pain 23 more
Total evaluations
42
Tried for
fibromyalgia (44) pain (37)
2 more
Treatment name(s)

(Cannabidiol CBD oil)
Perceived effectiveness
for pain (39 evaluations)
Side effects
agitation bad taste in mouth 4 more
Total evaluations
42
Tried for
pain (53) anxious mood (25)
7 more
Treatment name(s)

(Low Dose Naltrexone (LDN))
Perceived effectiveness
for fibromyalgia (58 evaluations)
Side effects
vivid dreams insomnia 26 more
Total evaluations
60
Tried for
fibromyalgia (59) fatigue (13)
2 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?

  • 48 new patients joined this month
  • 98585 say fibromyalgia is their primary condition

Age
Age Proportion # of patients
<20 51
20s 1508
30s 7680
40s 23936
50s 38010
60s 28161
70+ 7757
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6329
20-29 years 9419
30-39 years 13449
40-49 years 10005
50-59 years 3507
60-69 years 499
70+ years 68

Distribution of sex

Sex
Sex Proportion # of patients
Male 3909
Female 103817

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 49136
Not Diagnosed 2988

These charts show data from fibromyalgia patients who have completed their condition history
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