Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1212
Tried for
fibromyalgia (1186) depressed mood (156)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
753
Tried for
fibromyalgia (733) pain (113)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
750
Tried for
fibromyalgia (696) pain (209)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
339
Tried for
pain (219) fibromyalgia (192)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
219
Tried for
fibromyalgia (176) pain (101)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
190
Tried for
fibromyalgia (148) pain (99)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
152
Tried for
pain (122) fibromyalgia (88)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
111
Tried for
fibromyalgia (74) pain (64)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
100
Tried for
fibromyalgia (96) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
96
Tried for
depressed mood (65) fibromyalgia (32)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (707 evaluations)
Side effects
weight gain nausea 215 more
Total evaluations
745
Tried for
fibromyalgia (1186) depressed mood (156)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (413 evaluations)
Side effects
weight gain brain fog 161 more
Total evaluations
434
Tried for
fibromyalgia (733) pain (113)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (410 evaluations)
Side effects
weight gain dizziness 148 more
Total evaluations
456
Tried for
fibromyalgia (696) pain (209)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (108 evaluations)
Side effects
drowsiness nausea 49 more
Total evaluations
196
Tried for
pain (219) fibromyalgia (192)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (141 evaluations)
Side effects
dry mouth weight gain 61 more
Total evaluations
197
Tried for
fibromyalgia (176) pain (101)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (85 evaluations)
Side effects
drowsiness sleepiness 34 more
Total evaluations
123
Tried for
fibromyalgia (148) pain (99)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (65 evaluations)
Side effects
constipation drowsiness 23 more
Total evaluations
79
Tried for
pain (122) fibromyalgia (88)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (38 evaluations)
Side effects
nausea stomach pain 19 more
Total evaluations
65
Tried for
fibromyalgia (74) pain (64)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 19 more
Total evaluations
49
Tried for
fibromyalgia (96) muscle pain (4)
3 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (36 evaluations)
Side effects
anxious mood dizziness 57 more
Total evaluations
62
Tried for
depressed mood (65) fibromyalgia (32)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 69
20s 1819
30s 8645
40s 24539
50s 34809
60s 23078
70+ 5525
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6324
20-29 years 9403
30-39 years 13428
40-49 years 9972
50-59 years 3487
60-69 years 496
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3676
Female 95295

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48970
Not Diagnosed 2989

These charts show data from fibromyalgia patients who have completed their condition history
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