Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
979
Tried for
fibromyalgia (957) depressed mood (120)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
605
Tried for
fibromyalgia (565) pain (160)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
582
Tried for
fibromyalgia (569) pain (86)
4 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
255
Tried for
pain (155) fibromyalgia (153)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
160
Tried for
fibromyalgia (127) pain (68)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
159
Tried for
fibromyalgia (124) pain (82)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
119
Tried for
pain (95) fibromyalgia (63)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
97
Tried for
fibromyalgia (66) pain (53)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
76
Tried for
fibromyalgia (72) muscle pain (4)
2 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
73
Tried for
depressed mood (51) fibromyalgia (26)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (581 evaluations)
Side effects
weight gain nausea 205 more
Total evaluations
615
Tried for
fibromyalgia (957) depressed mood (120)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (346 evaluations)
Side effects
weight gain dizziness 135 more
Total evaluations
380
Tried for
fibromyalgia (565) pain (160)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (348 evaluations)
Side effects
weight gain dizziness 138 more
Total evaluations
361
Tried for
fibromyalgia (569) pain (86)
4 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (84 evaluations)
Side effects
nausea sleepiness 36 more
Total evaluations
159
Tried for
pain (155) fibromyalgia (153)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (109 evaluations)
Side effects
dry mouth weight gain 49 more
Total evaluations
142
Tried for
fibromyalgia (127) pain (68)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (72 evaluations)
Side effects
drowsiness sleepiness 29 more
Total evaluations
100
Tried for
fibromyalgia (124) pain (82)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (49 evaluations)
Side effects
constipation drowsiness 18 more
Total evaluations
60
Tried for
pain (95) fibromyalgia (63)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (33 evaluations)
Side effects
nausea stomach pain 18 more
Total evaluations
57
Tried for
fibromyalgia (66) pain (53)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (39 evaluations)
Side effects
drowsiness sleepiness 15 more
Total evaluations
44
Tried for
fibromyalgia (72) muscle pain (4)
2 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (30 evaluations)
Side effects
anxious mood apathy 51 more
Total evaluations
51
Tried for
depressed mood (51) fibromyalgia (26)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 57
20s 1723
30s 8285
40s 23930
50s 34792
60s 23875
70+ 6028
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6311
20-29 years 9387
30-39 years 13412
40-49 years 9963
50-59 years 3480
60-69 years 493
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3716
Female 95475

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48924
Not Diagnosed 2982

These charts show data from fibromyalgia patients who have completed their condition history
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