Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1305
Tried for
fibromyalgia (1280) depressed mood (167)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
815
Tried for
fibromyalgia (795) pain (124)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
812
Tried for
fibromyalgia (752) pain (237)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
366
Tried for
pain (235) fibromyalgia (208)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
243
Tried for
fibromyalgia (196) pain (112)
5 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
198
Tried for
fibromyalgia (158) pain (101)
4 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
172
Tried for
pain (138) fibromyalgia (98)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
117
Tried for
fibromyalgia (79) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
103
Tried for
fibromyalgia (100) pain (4)
3 more
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
98
Tried for
anxious mood (95) fibromyalgia (3)
4 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (762 evaluations)
Side effects
weight gain nausea 232 more
Total evaluations
800
Tried for
fibromyalgia (1280) depressed mood (167)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (433 evaluations)
Side effects
weight gain brain fog 162 more
Total evaluations
453
Tried for
fibromyalgia (795) pain (124)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (453 evaluations)
Side effects
weight gain dizziness 165 more
Total evaluations
504
Tried for
fibromyalgia (752) pain (237)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for pain (119 evaluations)
Side effects
sleepiness drowsiness 53 more
Total evaluations
214
Tried for
pain (235) fibromyalgia (208)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (149 evaluations)
Side effects
dry mouth weight gain 66 more
Total evaluations
212
Tried for
fibromyalgia (196) pain (112)
5 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (97 evaluations)
Side effects
drowsiness sleepiness 36 more
Total evaluations
133
Tried for
fibromyalgia (158) pain (101)
4 more
Treatment name(s)

(Norco)
Perceived effectiveness
for pain (65 evaluations)
Side effects
constipation drowsiness 24 more
Total evaluations
83
Tried for
pain (138) fibromyalgia (98)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (41 evaluations)
Side effects
nausea stomach pain 21 more
Total evaluations
68
Tried for
fibromyalgia (79) pain (67)
2 more
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for fibromyalgia (45 evaluations)
Side effects
drowsiness sleepiness 18 more
Total evaluations
48
Tried for
fibromyalgia (100) pain (4)
3 more
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (46 evaluations)
Side effects
sleepiness tiredness 12 more
Total evaluations
55
Tried for
anxious mood (95) fibromyalgia (3)
4 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 71
20s 1959
30s 9045
40s 25163
50s 34610
60s 21923
70+ 5053
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6302
20-29 years 9373
30-39 years 13391
40-49 years 9946
50-59 years 3476
60-69 years 497
70+ years 66

Distribution of sex

Sex
Sex Proportion # of patients
Male 3622
Female 94675

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 48764
Not Diagnosed 2981

These charts show data from fibromyalgia patients who have completed their condition history
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