Eating disorder

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is eating disorder?

Eating disorders are a group of disorders characterized by physiological and psychological disturbances in eating behavior, appetite or food intake.

Common symptoms reported by people with eating disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for eating disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Nutrition/Diet
How many have tried
228
Tried for
eating disorder (5)
Treatment name(s)

(Depression Skills Group Therapy)
Type
Psychotherapy
How many have tried
297
Tried for
eating disorder (4)
Treatment name(s)

(Talk therapy)
Type
Psychotherapy
How many have tried
922
Tried for
eating disorder (4)

Data from patients with eating disorder, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with eating disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for eating disorder (6 evaluations)
Side effects
Total evaluations
7
Tried for
eating disorder (5)
Treatment name(s)

(Depression Skills Group Therapy)
Perceived effectiveness
for eating disorder (2 evaluations)
Side effects
Total evaluations
5
Tried for
eating disorder (4)
Treatment name(s)

(Talk therapy)
Perceived effectiveness
for eating disorder (5 evaluations)
Side effects
depressed mood
Total evaluations
6
Tried for
eating disorder (4)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with eating disorder, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has eating disorder on PatientsLikeMe?

  • 1 new patients joined this month
  • 221 say eating disorder is their primary condition

Age
Age Proportion # of patients
<20 11
20s 339
30s 825
40s 688
50s 570
60s 324
70+ 102
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 720
20-29 years 165
30-39 years 67
40-49 years 31
50-59 years 10
60-69 years 3
70+ years 1

Distribution of sex

Sex
Sex Proportion # of patients
Male 400
Female 2463

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1099
Not Diagnosed 1880

These charts show data from eating disorder patients who have completed their condition history
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