Dermatitis herpetiformis

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What is dermatitis herpetiformis?

Dermatitis herpetiformis is an extremely itchy rash made of bumps and blisters. The rash is chronic, which means it continues over a long period of time.

Common symptoms reported by people with dermatitis herpetiformis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with dermatitis herpetiformis

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Breath Meditation)
Type
Complementary and Alternative Medicine
How many have tried
1
Tried for
anxious mood (1) pain (1)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)

(Methyl B-12 Prescription)
Type
Supplement
How many have tried
1
Tried for
fatigue (1)

Data from patients with dermatitis herpetiformis, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with dermatitis herpetiformis

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1) pain (1)
Treatment name(s)

(Breath Meditation)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1) pain (1)
Perceived effectiveness
for fatigue (5 evaluations)
Side effects
fluttering in ear increased insomnia 2 more
Total evaluations
5
Tried for
fatigue (1)
Treatment name(s)

(Methyl B-12 Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
fatigue (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with dermatitis herpetiformis, who reported starting treatments within the last 5 years.
Last updated:

Who has dermatitis herpetiformis on PatientsLikeMe?

  • 0 new patients joined this month
  • 25 say dermatitis herpetiformis is their primary condition

Age
Age Proportion # of patients
<20 1
20s 0
30s 11
40s 6
50s 9
60s 6
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 2
20-29 years 4
30-39 years 2
40-49 years 1
50-59 years 1
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 17
Female 20

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 11
Not Diagnosed 5

These charts show data from dermatitis herpetiformis patients who have completed their condition history
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