Crohn's disease

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What is Crohn's disease?

Crohn's disease is a type of inflammatory bowel disease that may affect any part of the gastrointestinal tract from mouth to anus. It often involves a chronic cycle featuring episodes of worsening symptoms (including abdominal pain and diarrhea) followed by asymptomatic periods (i.e. remission).

Common symptoms reported by people with Crohn's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with Crohn's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
48
Tried for
Crohn's disease (48)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
29
Tried for
Crohn's disease (29)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
22
Tried for
Crohn's disease (21) abdominal pain (1)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
19
Tried for
Crohn's disease (19) abdominal pain (1)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
16
Tried for
Crohn's disease (16)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
15
Tried for
Crohn's disease (15)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
13
Tried for
Crohn's disease (13)
Treatment name(s)

(Trexall)
Type
Prescription Drug
How many have tried
8
Tried for
Crohn's disease (8)
Treatment name(s)

(Stelara)
Type
Prescription Drug
How many have tried
7
Tried for
Crohn's disease (7)
Treatment name(s)

(Lexapro)
Type
Prescription Drug
How many have tried
6
Tried for
anxious mood (5) depressed mood (3)
1 more

Data from patients with Crohn's disease, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with Crohn's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Humira)
Perceived effectiveness
for Crohn's disease (38 evaluations)
Side effects
weakened immune system nausea 27 more
Total evaluations
38
Tried for
Crohn's disease (48)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for Crohn's disease (13 evaluations)
Side effects
abdominal bloating alternating constipation and diarrhea 8 more
Total evaluations
14
Tried for
Crohn's disease (29)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Crohn's disease (11 evaluations)
Side effects
weight gain moon face 19 more
Total evaluations
11
Tried for
Crohn's disease (21) abdominal pain (1)
Treatment name(s)

(Remicade)
Perceived effectiveness
for Crohn's disease (7 evaluations)
Side effects
anaphylaxis dry skin 6 more
Total evaluations
7
Tried for
Crohn's disease (19) abdominal pain (1)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for Crohn's disease (15 evaluations)
Side effects
mood swings irritability 21 more
Total evaluations
16
Tried for
Crohn's disease (16)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for Crohn's disease (13 evaluations)
Side effects
cough hair loss 3 more
Total evaluations
13
Tried for
Crohn's disease (15)
Treatment name(s)

(Imuran)
Perceived effectiveness
for Crohn's disease (8 evaluations)
Side effects
weakened immune system aftertaste 7 more
Total evaluations
8
Tried for
Crohn's disease (13)
Treatment name(s)

(Trexall)
Perceived effectiveness
for Crohn's disease (9 evaluations)
Side effects
nausea abdominal pain 9 more
Total evaluations
9
Tried for
Crohn's disease (8)
Treatment name(s)

(Stelara)
Perceived effectiveness
for Crohn's disease (5 evaluations)
Side effects
migraine headaches rash on neck
Total evaluations
5
Tried for
Crohn's disease (7)
Treatment name(s)

(Lexapro)
Perceived effectiveness
for anxious mood (3 evaluations)
Side effects
drowsiness
Total evaluations
8
Tried for
anxious mood (5) depressed mood (3)
1 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Crohn's disease, who reported starting treatments within the last 5 years.
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Who has Crohn's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 79
20s 535
30s 980
40s 1412
50s 1477
60s 830
70+ 248
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 753
20-29 years 576
30-39 years 268
40-49 years 187
50-59 years 91
60-69 years 25
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 1390
Female 4209

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2295
Not Diagnosed 58

These charts show data from Crohn's disease patients who have completed their condition history
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