Crohn's disease

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is Crohn's disease?

Crohn's disease is a type of inflammatory bowel disease that may affect any part of the gastrointestinal tract from mouth to anus. It often involves a chronic cycle featuring episodes of worsening symptoms (including abdominal pain and diarrhea) followed by asymptomatic periods (i.e. remission).

Common symptoms reported by people with Crohn's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for Crohn's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Stelara)
Type
Prescription Drug
How many have tried
4
Tried for
Crohn's disease (9)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
879
Tried for
Crohn's disease (7)
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
649
Tried for
Crohn's disease (6)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
1214
Tried for
Crohn's disease (5)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
2529
Tried for
Crohn's disease (5)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
991
Tried for
Crohn's disease (4)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
808
Tried for
Crohn's disease (4)
Treatment name(s)

(Entyvio)
Type
Prescription Drug
How many have tried
4
Tried for
Crohn's disease (4)
Treatment name(s)

(Cimzia)
Type
Prescription Drug
How many have tried
10
Tried for
Crohn's disease (2)
Treatment name(s)

(Purinethol)
Type
Prescription Drug
How many have tried
407
Tried for
Crohn's disease (2)

Data from patients with Crohn's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with Crohn's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Stelara)
Perceived effectiveness
for Crohn's disease (3 evaluations)
Side effects
chronic fatigue migraine headaches 1 more
Total evaluations
3
Tried for
Crohn's disease (9)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for Crohn's disease (3 evaluations)
Side effects
mood swings
Total evaluations
3
Tried for
Crohn's disease (7)
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for Crohn's disease (3 evaluations)
Side effects
excessive sweating increased appetite 2 more
Total evaluations
3
Tried for
Crohn's disease (6)
Treatment name(s)

(Remicade)
Perceived effectiveness
for Crohn's disease (1 evaluation)
Side effects
overwhelming fatigue
Total evaluations
1
Tried for
Crohn's disease (5)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for Crohn's disease (4 evaluations)
Side effects
headaches muscle pain
Total evaluations
4
Tried for
Crohn's disease (5)
Treatment name(s)

(Humira)
Perceived effectiveness
for Crohn's disease (1 evaluation)
Side effects
sleepiness
Total evaluations
1
Tried for
Crohn's disease (4)
Treatment name(s)

(Imuran)
Perceived effectiveness
for Crohn's disease (2 evaluations)
Side effects
nausea
Total evaluations
2
Tried for
Crohn's disease (4)
Treatment name(s)

(Entyvio)
Perceived effectiveness
for Crohn's disease (1 evaluation)
Side effects
abdominal cramps headaches 3 more
Total evaluations
1
Tried for
Crohn's disease (4)
Treatment name(s)

(Cimzia)
Perceived effectiveness
for Crohn's disease (1 evaluation)
Side effects
diarrhea
Total evaluations
1
Tried for
Crohn's disease (2)
Treatment name(s)

(Purinethol)
Perceived effectiveness
for Crohn's disease (2 evaluations)
Side effects
change in taste chronic fatigue 3 more
Total evaluations
2
Tried for
Crohn's disease (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Crohn's disease, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has Crohn's disease on PatientsLikeMe?

  • 4 new patients joined this month
  • 5178 say Crohn's disease is their primary condition

Age
Age Proportion # of patients
<20 42
20s 375
30s 894
40s 1279
50s 1668
60s 1056
70+ 407
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 758
20-29 years 580
30-39 years 269
40-49 years 189
50-59 years 96
60-69 years 25
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 1454
Female 4303

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2317
Not Diagnosed 58

These charts show data from Crohn's disease patients who have completed their condition history
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