Chronic inflammatory demyelinating polyneuropathy

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What is chronic inflammatory demyelinating polyneuropathy?

Chronic inflammatory demyelinating polyradiculoneuropathy is an acquired demyelinating peripheral neuropathy that is thought to be an autoimmune disorder. It is considered the chronic variant of Guillain-Barre syndrome.

Common symptoms reported by people with chronic inflammatory demyelinating polyneuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Type
Prescription Drug
How many have tried
240
Treatment name(s)

(Prednisone Intensol)
Type
Prescription Drug
How many have tried
159
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
193
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
60
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
97
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
72
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
71
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
79

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with chronic inflammatory demyelinating polyneuropathy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Gammaglobulin (IVIg))
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (13 evaluations)
Side effects
headaches fatigue 7 more
Total evaluations
13
Treatment name(s)

(Prednisone Intensol)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (2 evaluations)
Side effects
constant hunger fatigue 3 more
Total evaluations
3
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
insomnia tremor(s) 2 more
Total evaluations
1
Treatment name(s)

(Lyrica)
Perceived effectiveness
for chronic inflammatory demyelinating polyneuropathy (1 evaluation)
Side effects
blurry vision
Total evaluations
1
Treatment name(s)

(Elavil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Ultram)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with chronic inflammatory demyelinating polyneuropathy, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has chronic inflammatory demyelinating polyneuropathy on PatientsLikeMe?

  • 2 new patients joined this month
  • 376 say CIDP is their primary condition

Age
Age Proportion # of patients
<20 1
20s 9
30s 30
40s 69
50s 119
60s 132
70+ 107
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 9
20-29 years 20
30-39 years 25
40-49 years 53
50-59 years 48
60-69 years 28
70+ years 5

Distribution of sex

Sex
Sex Proportion # of patients
Male 187
Female 286

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 226
Not Diagnosed 13

These charts show data from CIDP patients who have completed their condition history
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