Autism spectrum disorder

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is autism spectrum disorder?

Autism spectrum disorders/conditions are neural development disorders characterized by impaired social interaction and communication, restricted and repetitive behavior, with varying developmental and intellectual disabilities. These signs begin before a child is three years old.

Common symptoms reported by people with autism spectrum disorder

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people for autism spectrum disorder

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Risperdal)
Type
Prescription Drug
How many have tried
149
Tried for
autism spectrum disorder (5)
Treatment name(s)

(Abilify)
Type
Prescription Drug
How many have tried
99
Tried for
autism spectrum disorder (1)
Treatment name(s)

(Outpatient Occupational Therapy)
Type
Physical Therapy
How many have tried
428
Tried for
autism spectrum disorder (1)
Treatment name(s)
Type
Physical Therapy
How many have tried
462
Tried for
autism spectrum disorder (1)

Data from patients with autism spectrum disorder, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Compare treatments taken by people with autism spectrum disorder

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Risperdal)
Perceived effectiveness
for autism spectrum disorder (1 evaluation)
Side effects
emotional flatness (flat affect) hunger 2 more
Total evaluations
2
Tried for
autism spectrum disorder (5)
Treatment name(s)

(Abilify)
Perceived effectiveness
for autism spectrum disorder (1 evaluation)
Side effects
restless feeling in legs weight gain
Total evaluations
1
Tried for
autism spectrum disorder (1)
Treatment name(s)

(Outpatient Occupational Therapy)
Perceived effectiveness
for autism spectrum disorder (1 evaluation)
Side effects
Total evaluations
1
Tried for
autism spectrum disorder (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
autism spectrum disorder (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with autism spectrum disorder, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
Last updated:

Who has autism spectrum disorder on PatientsLikeMe?

  • 4 new patients joined this month
  • 873 say autism spectrum disorder is their primary condition

Age
Age Proportion # of patients
<20 285
20s 281
30s 204
40s 232
50s 139
60s 43
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 385
20-29 years 27
30-39 years 13
40-49 years 7
50-59 years 2
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 520
Female 664

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 548
Not Diagnosed 114

These charts show data from autism spectrum disorder patients who have completed their condition history
Last updated: