Alport syndrome
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What is Alport syndrome?
Alport's Syndrome, also known as hereditary nephritis, is a genetic syndrome that affects males more often than females and is associated with progressive renal insufficiency, hearing loss and abnormalities of the eyes.
Common symptoms reported by people with Alport syndrome
Treatments taken by people with Alport syndrome
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Compare treatments taken by people with Alport syndrome
Let’s build this page together! When you share what it’s like to have Alport syndrome through your profile, those stories and data appear here too.
Got a question about living with Alport syndrome? Members in the forum might have the answers.
Who has Alport syndrome on PatientsLikeMe?
- 59 patients have this condition
- 0 new patients joined this month
- 23 say Alport syndrome is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 1 | |
| 20s | 4 | |
| 30s | 10 | |
| 40s | 10 | |
| 50s | 16 | |
| 60s | 10 | |
| 70+ | 2 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 7 | |
| 20-29 years | 2 | |
| 30-39 years | 0 | |
| 40-49 years | 1 | |
| 50-59 years | 0 | |
| 60-69 years | 0 | |
| 70+ years | 0 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 30 | |
| Female | 24 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 13 | |
| Not Diagnosed | 1 |