Amyotrophic lateral sclerosis
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- help each other live better and uncover the best ways to manage your health today
- help researchers shorten the path to new treatments tomorrow
How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.
What is amyotrophic lateral sclerosis?
ALS (amyotrophic lateral sclerosis) is a degenerative disorder affecting upper motor neurons in the brain and lower motor neurons in the brainstem and spinal cord. Symptoms include progressive weakness, atrophy, fasciculation, dysphagia, and eventual paralysis of respiratory function.
Common symptoms reported by people with amyotrophic lateral sclerosis
Common symptoms
How bad it is
What people are taking for it
Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people for amyotrophic lateral sclerosis
Treatment name(s)
Type
How many have tried
Tried for
Data from patients with amyotrophic lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Compare treatments taken by people with amyotrophic lateral sclerosis
Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Perceived effectiveness
for amyotrophic lateral sclerosis (92 evaluations)
Total evaluations
93
Tried for
amyotrophic lateral sclerosis
(120)
Perceived effectiveness
for amyotrophic lateral sclerosis (31 evaluations)
Total evaluations
31
Tried for
amyotrophic lateral sclerosis
(55)
- Major
- Moderate
- Slight
- None
- Can't tell
- Severe
- Moderate
- Mild
- None
Data from patients with amyotrophic lateral sclerosis, who have ever reported treatments, ordered by their reporting frequency during the last 5 years.
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Who has amyotrophic lateral sclerosis on PatientsLikeMe?
- 23 new patients joined this month
- 13690 say ALS is their primary condition
| Age | Proportion | # of patients |
|---|---|---|
| <20 | 4 | |
| 20s | 103 | |
| 30s | 453 | |
| 40s | 1047 | |
| 50s | 2595 | |
| 60s | 3683 | |
| 70+ | 3877 |
| Age at first symptom | Proportion | # of patients |
|---|---|---|
| 0-19 years | 40 | |
| 20-29 years | 226 | |
| 30-39 years | 742 | |
| 40-49 years | 1459 | |
| 50-59 years | 1877 | |
| 60-69 years | 1290 | |
| 70+ years | 339 |
Distribution of sex
| Sex | Proportion | # of patients |
|---|---|---|
| Male | 6130 | |
| Female | 5007 |
| Diagnosis status | Proportion | # of patients |
|---|---|---|
| Diagnosed | 6622 | |
| Not Diagnosed | 295 |
These charts show data from ALS patients who have completed their condition history
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