What is granulomatosis with polyangiitis (Wegener's)?

Granulomatosis with Polyangiitis (Wegener's) is a rare automimmune disorder that causes inflammation of small and medium sized blood vessels (vasculitis) primarily in the lungs and kidneys.

How do members experience granulomatosis with polyangiitis (Wegener's)?

Top 5 symptoms reported by people with granulomatosis with polyangiitis (Wegener's)*

*Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.

Top treatments taken by people for granulomatosis with polyangiitis (Wegener's)*

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Compare treatments taken by people with granulomatosis with polyangiitis (Wegener's)*

Treatment
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment

(Cytoxan)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (1 evaluation)
Side effects
fatigue nausea
Total evaluations
1
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment

(Prednisone Intensol)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (2)
Treatment

(Folic Acid Prescription)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Apo-Methotrexate)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
granulomatosis with polyangiitis (Wegener's) (1)
Treatment

(Solu-Medrol Infusion)
Perceived effectiveness
for granulomatosis with polyangiitis (Wegener's) (1 evaluation)
Side effects
candida (fungal) infection fatigue
Total evaluations
1
Tried for
granulomatosis with polyangiitis (Wegener's) (1)

*Data from patients with granulomatosis with polyangiitis (Wegener's), who have ever reported treatments, ordered by their reporting frequency during the last 5 years.

Who has granulomatosis with polyangiitis (Wegener's) on PatientsLikeMe?

Age

Age Proportion # of patients
<20 2
20s 7
30s 21
40s 29
50s 37
60s 38
70+ 38

Distribution of sex

Sex

Sex Proportion # of patients
Male 49
Female 121