Fibromyalgia

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Becca explains in this video.

What is fibromyalgia?

Fibromyalgia is characterized by widespread body pain or aching muscles (myalgia) and multiple points of tenderness to palpation, called tender points. Fibromyalgia is often associated with multiple symptoms, such as amplified pain, sleep disturbances, fatigue, stiffness, headaches, and depression.

Common symptoms reported by people with fibromyalgia

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with fibromyalgia

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1,632
Tried for
fibromyalgia (1609) depressed mood (205)
5 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
1,108
Tried for
fibromyalgia (1088) Pain (155)
5 more
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
872
Tried for
fibromyalgia (804) Pain (280)
6 more
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
483
Tried for
fibromyalgia (308) Pain (300)
3 more
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
338
Tried for
fibromyalgia (283) Pain (161)
4 more
Treatment name(s)

(Flexeril)
Type
Prescription Drug
How many have tried
251
Tried for
fibromyalgia (216) Pain (117)
3 more
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
218
Tried for
Pain (174) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Type
Prescription Drug
How many have tried
154
Tried for
fibromyalgia (110) Pain (96)
1 more
Treatment name(s)

(Savella)
Type
Prescription Drug
How many have tried
136
Tried for
fibromyalgia (131) Pain (31)
1 more
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
127
Tried for
depressed mood (84) fibromyalgia (44)
3 more

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with fibromyalgia

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for fibromyalgia (905 evaluations)
Side effects
weight gain nausea 278 more
Total evaluations
966
Tried for
fibromyalgia (1609) depressed mood (205)
5 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for fibromyalgia (560 evaluations)
Side effects
weight gain dizziness 228 more
Total evaluations
586
Tried for
fibromyalgia (1087) Pain (155)
5 more
Treatment name(s)

(Neurontin)
Perceived effectiveness
for fibromyalgia (465 evaluations)
Side effects
weight gain dizziness 183 more
Total evaluations
524
Tried for
fibromyalgia (804) Pain (280)
6 more
Treatment name(s)

(Ultram)
Perceived effectiveness
for fibromyalgia (170 evaluations)
Side effects
drowsiness nausea 69 more
Total evaluations
268
Tried for
fibromyalgia (308) Pain (300)
3 more
Treatment name(s)

(Elavil)
Perceived effectiveness
for fibromyalgia (214 evaluations)
Side effects
dry mouth weight gain 83 more
Total evaluations
284
Tried for
fibromyalgia (283) Pain (161)
4 more
Treatment name(s)

(Flexeril)
Perceived effectiveness
for fibromyalgia (140 evaluations)
Side effects
drowsiness sleepiness 41 more
Total evaluations
176
Tried for
fibromyalgia (216) Pain (117)
3 more
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (77 evaluations)
Side effects
constipation drowsiness 26 more
Total evaluations
98
Tried for
Pain (174) fibromyalgia (138)
3 more
Treatment name(s)

(Mobic)
Perceived effectiveness
for fibromyalgia (54 evaluations)
Side effects
anxious mood nausea 29 more
Total evaluations
84
Tried for
fibromyalgia (110) Pain (96)
1 more
Treatment name(s)

(Savella)
Perceived effectiveness
for fibromyalgia (90 evaluations)
Side effects
nausea excessive sweating 54 more
Total evaluations
94
Tried for
fibromyalgia (131) Pain (31)
1 more
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (51 evaluations)
Side effects
dry mouth anxious mood 67 more
Total evaluations
84
Tried for
depressed mood (84) fibromyalgia (44)
3 more
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with fibromyalgia, who reported starting treatments within the last 5 years.
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Who has fibromyalgia on PatientsLikeMe?


Age
Age Proportion # of patients
<20 93
20s 2,068
30s 9,358
40s 24,576
50s 31,605
60s 18,303
70+ 3,652
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6,086
20-29 years 8,942
30-39 years 12,761
40-49 years 9,405
50-59 years 3,327
60-69 years 467
70+ years 63

Sex

Distribution of sex

96% Female
4% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 44,664
Not Diagnosed 3,046

These charts show data from fibromyalgia patients who have completed their condition history
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