Non-Hodgkin's lymphoma

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By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is non-Hodgkin's lymphoma?

Non-Hodgkin lymphomas (NHL) are a group of blood cancers that vary significantly in their severity, from slow growing to very aggressive. NHL may originate in the lymph nodes, bone marrow, the spleen, liver and gastrointestinal tract.

Common symptoms reported by people with non-Hodgkin's lymphoma

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with non-Hodgkin's lymphoma

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
5
Tried for
non-Hodgkin's lymphoma (5)
Treatment name(s)

(Rituxan)
Type
Prescription Drug
How many have tried
4
Tried for
non-Hodgkin's lymphoma (4)
Treatment name(s)
Type
Prescription Drug
How many have tried
3
Tried for
non-Hodgkin's lymphoma (3)
Treatment name(s)
Type
Prescription Drug
How many have tried
2
Tried for
non-Hodgkin's lymphoma (2)
Treatment name(s)

(Paxil)
Type
Prescription Drug
How many have tried
2
Tried for
depressed mood (2)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
2
Tried for
non-Hodgkin's lymphoma (2)
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
depressed mood (1)
Treatment name(s)
Type
Procedures
How many have tried
1
Tried for
non-Hodgkin's lymphoma (1)
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with non-Hodgkin's lymphoma, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with non-Hodgkin's lymphoma

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for non-Hodgkin's lymphoma (2 evaluations)
Side effects
hair loss muscle weakness 22 more
Total evaluations
3
Tried for
non-Hodgkin's lymphoma (5)
Treatment name(s)

(Rituxan)
Perceived effectiveness
for non-Hodgkin's lymphoma (3 evaluations)
Side effects
fatigue abdominal pain 1 more
Total evaluations
3
Tried for
non-Hodgkin's lymphoma (4)
Treatment name(s)
Perceived effectiveness
for non-Hodgkin's lymphoma (2 evaluations)
Side effects
congestive heart failure heart attack (myocardial infarction)
Total evaluations
2
Tried for
non-Hodgkin's lymphoma (3)
Treatment name(s)
Perceived effectiveness
for non-Hodgkin's lymphoma (2 evaluations)
Side effects
overwhelming fatigue loss of sense of taste 2 more
Total evaluations
3
Tried for
non-Hodgkin's lymphoma (2)
Treatment name(s)

(Paxil)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
Total evaluations
2
Tried for
depressed mood (2)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for non-Hodgkin's lymphoma (1 evaluation)
Side effects
fatigue radiation burn
Total evaluations
1
Tried for
non-Hodgkin's lymphoma (2)
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
depressed mood (1)
Treatment name(s)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
non-Hodgkin's lymphoma (1)
Treatment name(s)

(Neurontin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
pain (1)
Treatment name(s)

(Norco)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with non-Hodgkin's lymphoma, who reported starting treatments within the last 5 years.
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Who has non-Hodgkin's lymphoma on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 18
30s 21
40s 50
50s 83
60s 119
70+ 46
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 6
20-29 years 11
30-39 years 13
40-49 years 26
50-59 years 26
60-69 years 24
70+ years 3

Sex

Distribution of sex

59% Female
41% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 167
Not Diagnosed 9

These charts show data from non-Hodgkin's lymphoma patients who have completed their condition history
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