Lichen planopilaris

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is lichen planopilaris?

Lichen planopilaris is a form of hair loss which involves scarring, a follicular form of lichen planus, and is considered to have an autoimmune cause.

Common symptoms reported by people with lichen planopilaris

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with lichen planopilaris

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Clobex)
Type
Prescription Drug
How many have tried
3
Tried for
lichen planopilaris (3)
Treatment name(s)

(Doxylin)
Type
Prescription Drug
How many have tried
3
Tried for
lichen planopilaris (3)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
2
Tried for
lichen planopilaris (2)
Treatment name(s)
Type
Prescription Drug
How many have tried
1
Tried for
lichen planopilaris (1)
Treatment name(s)

(CellCept)
Type
Prescription Drug
How many have tried
1
Tried for
lichen planopilaris (1)

Data from patients with lichen planopilaris, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with lichen planopilaris

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Clobex)
Perceived effectiveness
for lichen planopilaris (3 evaluations)
Side effects
headaches
Total evaluations
3
Tried for
lichen planopilaris (3)
Treatment name(s)

(Doxylin)
Perceived effectiveness
for lichen planopilaris (2 evaluations)
Side effects
diarrhea migraine headaches 1 more
Total evaluations
2
Tried for
lichen planopilaris (3)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
lichen planopilaris (2)
Treatment name(s)
Perceived effectiveness
for lichen planopilaris (1 evaluation)
Side effects
Total evaluations
1
Tried for
lichen planopilaris (1)
Treatment name(s)

(CellCept)
Perceived effectiveness
for lichen planopilaris (1 evaluation)
Side effects
heartburn
Total evaluations
1
Tried for
lichen planopilaris (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with lichen planopilaris, who reported starting treatments within the last 5 years.
Last updated:

Who has lichen planopilaris on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 11
40s 15
50s 16
60s 11
70+ 3
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 1
20-29 years 3
30-39 years 7
40-49 years 6
50-59 years 3
60-69 years 1
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 12
Female 48

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 22
Not Diagnosed 1

These charts show data from lichen planopilaris patients who have completed their condition history
Last updated: