IgA Nephropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is IgA Nephropathy?

IgA nephropathy is a chronic autoimmune glomerulonephritis characterized by the deposition of antibodies to a protein called IgA in the glomeruli of the kidney, the structures that are the first step in filtering blood to from urine. It is the most common cause of primary glomerulonephritis.

Common symptoms reported by people with IgA Nephropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with IgA Nephropathy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
7
Tried for
IgA Nephropathy (7)
Check to add this treatment to your profile
Treatment name(s)

(Cozaar)
Type
Prescription Drug
How many have tried
3
Tried for
IgA Nephropathy (3)
Check to add this treatment to your profile
Treatment name(s)

(Solu-Medrol Infusion)
Type
Prescription Drug
How many have tried
3
Tried for
IgA Nephropathy (3)
Check to add this treatment to your profile
Treatment name(s)

(Lipitor)
Type
Prescription Drug
How many have tried
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Cytoxan)
Type
Prescription Drug
How many have tried
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
1
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Nexium)
Type
Prescription Drug
How many have tried
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(CVS Fish Oil)
Type
Supplement
How many have tried
1
Tried for
IgA Nephropathy (1)

Data from patients with IgA Nephropathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with IgA Nephropathy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Deltasone)
Perceived effectiveness
for IgA Nephropathy (2 evaluations)
Side effects
Tiredness Weight gain
How many evaluations
2
Tried for
IgA Nephropathy (7)
Check to add this treatment to your profile
Treatment name(s)

(Cozaar)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
IgA Nephropathy (3)
Check to add this treatment to your profile
Treatment name(s)

(Solu-Medrol Infusion)
Perceived effectiveness
for IgA Nephropathy (2 evaluations)
Side effects
Depressed mood Eyes water (tearing) 6 more
How many evaluations
2
Tried for
IgA Nephropathy (3)
Check to add this treatment to your profile
Treatment name(s)

(Lipitor)
Perceived effectiveness
for IgA Nephropathy (1 evaluation)
Side effects
How many evaluations
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Imuran)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Cytoxan)
Perceived effectiveness
for IgA Nephropathy (1 evaluation)
Side effects
Edema in lower extremities Mild Depression 1 more
How many evaluations
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
Depressed mood (1)
Check to add this treatment to your profile
Treatment name(s)

(Nexium)
Perceived effectiveness
for IgA Nephropathy (1 evaluation)
Side effects
How many evaluations
1
Tried for
IgA Nephropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(CVS Fish Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
How many evaluations
0
Tried for
IgA Nephropathy (1)

Data from patients with IgA Nephropathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has IgA Nephropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 9
30s 68
40s 77
50s 45
60s 22
70+ 0

Sex

Distribution of sex

56% Female
44% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 17
20-29 years 21
30-39 years 15
40-49 years 5
50-59 years 4
60-69 years 1
70+ years 0

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 89
Not Diagnosed 6

These charts show data from IgA Nephropathy patients who have completed their condition history
Last updated: