Spina bifida

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  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

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What is spina bifida?

Spina bifida is a developmental congenital disorder caused by the incomplete closing of the embryonic neural tube. Some vertebrae overlying the spinal cord are not fully formed and remain unfused and open.

Common symptoms reported by people with spina bifida

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with spina bifida

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Essential Oils)
Type
Procedures
How many have tried
2
Tried for
anxious mood (2) depressed mood (1)
2 more
Treatment name(s)

(Naprosyn)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
2
Tried for
pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Type
Procedures
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Symmetrel)
Type
Prescription Drug
How many have tried
1
Tried for
fatigue (1)
Treatment name(s)
Type
Psychotherapy
How many have tried
1
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Subutex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(BuTrans Transdermal Patch)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Valium)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)

Data from patients with spina bifida, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with spina bifida

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Essential Oils)
Perceived effectiveness
for anxious mood (6 evaluations)
Side effects
increased sex drive (libido)
Total evaluations
6
Tried for
anxious mood (2) depressed mood (1)
2 more
Treatment name(s)

(Naprosyn)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (1 evaluation)
Side effects
blackouts feeling sick 2 more
Total evaluations
1
Tried for
pain (2)
Treatment name(s)

(Chinese acupuncture and aravedic herbs)
Perceived effectiveness
for pain (4 evaluations)
Side effects
Total evaluations
4
Tried for
pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Symmetrel)
Perceived effectiveness
for fatigue (1 evaluation)
Side effects
fatigue
Total evaluations
1
Tried for
fatigue (1)
Treatment name(s)
Perceived effectiveness
for depressed mood (3 evaluations)
Side effects
Total evaluations
3
Tried for
depressed mood (1) pain (1)
Treatment name(s)

(Subutex)
Perceived effectiveness
for pain (2 evaluations)
Side effects
lack of sleep restless sleep
Total evaluations
2
Tried for
pain (1)
Treatment name(s)

(BuTrans Transdermal Patch)
Perceived effectiveness
for pain (4 evaluations)
Side effects
decreased sex drive (libido) lethargy
Total evaluations
4
Tried for
pain (1)
Treatment name(s)

(Valium)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
drowsiness syncope (fainting)
Total evaluations
2
Tried for
anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with spina bifida, who reported starting treatments within the last 5 years.
Last updated:

Who has spina bifida on PatientsLikeMe?


Age
Age Proportion # of patients
<20 6
20s 21
30s 34
40s 42
50s 26
60s 6
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 56
20-29 years 3
30-39 years 2
40-49 years 1
50-59 years 0
60-69 years 0
70+ years 0

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 81
Not Diagnosed 1

These charts show data from spina bifida patients who have completed their condition history
Last updated: