Crohn's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Crohn's disease?

Crohn's disease is a type of inflammatory bowel disease that may affect any part of the gastrointestinal tract from mouth to anus. It may cause a wide variety of symptoms including abdominal pain, diarrhea, vomiting, or weight loss.

Common symptoms reported by people with Crohn's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Crohn's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Humira Pen)
Type
Prescription Drug
How many have tried
80
Tried for
Crohn's disease (80)
Treatment name(s)

(Pentasa)
Type
Prescription Drug
How many have tried
61
Tried for
Crohn's disease (61) Abdominal pain (1)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
42
Tried for
Crohn's disease (42) Abdominal pain (1)
Treatment name(s)

(Pulmicort)
Type
Prescription Drug
How many have tried
36
Tried for
Crohn's disease (36)
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
31
Tried for
Crohn's disease (31)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
26
Tried for
Crohn's disease (25) Abdominal pain (1)
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
16
Tried for
Pain (14) Abdominal pain (2)
1 more
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
15
Tried for
Crohn's disease (15)
Treatment name(s)

(Cimzia)
Type
Prescription Drug
How many have tried
13
Tried for
Crohn's disease (13)
Treatment name(s)

(Apo-Methotrexate)
Type
Prescription Drug
How many have tried
13
Tried for
Crohn's disease (13)

Data from patients with Crohn's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Crohn's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Humira Pen)
Perceived effectiveness
for Crohn's disease (41 evaluations)
Side effects
Immune system weak Fatigue 25 more
Total evaluations
41
Tried for
Crohn's disease (80)
Treatment name(s)

(Pentasa)
Perceived effectiveness
for Crohn's disease (36 evaluations)
Side effects
Constipation Headaches 17 more
Total evaluations
37
Tried for
Crohn's disease (61) Abdominal pain (1)
Treatment name(s)

(Remicade)
Perceived effectiveness
for Crohn's disease (22 evaluations)
Side effects
Fatigue Joint pain 21 more
Total evaluations
22
Tried for
Crohn's disease (42) Abdominal pain (1)
Treatment name(s)

(Pulmicort)
Perceived effectiveness
for Crohn's disease (21 evaluations)
Side effects
Irritability Mood swings 28 more
Total evaluations
22
Tried for
Crohn's disease (36)
Treatment name(s)

(Imuran)
Perceived effectiveness
for Crohn's disease (16 evaluations)
Side effects
Fatigue Fever 23 more
Total evaluations
16
Tried for
Crohn's disease (31)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Crohn's disease (12 evaluations)
Side effects
Weight gain Insomnia 22 more
Total evaluations
12
Tried for
Crohn's disease (25) Abdominal pain (1)
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (4 evaluations)
Side effects
Nausea Anxiety and frustration 24 more
Total evaluations
9
Tried for
Pain (14) Abdominal pain (2)
1 more
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
for Crohn's disease (5 evaluations)
Side effects
Abdominal pain Constipation 8 more
Total evaluations
5
Tried for
Crohn's disease (15)
Treatment name(s)

(Cimzia)
Perceived effectiveness
for Crohn's disease (8 evaluations)
Side effects
Rash on arm Flu like symptoms 8 more
Total evaluations
8
Tried for
Crohn's disease (13)
Treatment name(s)

(Apo-Methotrexate)
Perceived effectiveness
for Crohn's disease (8 evaluations)
Side effects
Nausea Abdominal pain 8 more
Total evaluations
8
Tried for
Crohn's disease (13)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Crohn's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Crohn's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 132
20s 550
30s 909
40s 1,359
50s 1,198
60s 605
70+ 137
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 720
20-29 years 517
30-39 years 226
40-49 years 153
50-59 years 70
60-69 years 20
70+ years 3

Sex

Distribution of sex

75% Female
25% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 1,973
Not Diagnosed 49

These charts show data from Crohn's disease patients who have completed their condition history
Last updated: