Psychogenic non-epileptic seizures

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What is psychogenic non-epileptic seizures?

Psychogenic non-epileptic seizures are events resembling an epileptic seizure, but without the characteristic electrical discharges associated with epilepsy. Instead, PNES are psychological in origin.

Common symptoms reported by people with psychogenic non-epileptic seizures

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
8
Tried for
pain (4) psychogenic non-epileptic seizures (4)
1 more
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
7
Tried for
depressed mood (7) anxious mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
5
Tried for
anxious mood (5)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
5
Tried for
anxious mood (4) depressed mood (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Type
Prescription Drug
How many have tried
4
Tried for
pain (3) psychogenic non-epileptic seizures (3)
2 more
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
4
Tried for
pain (4)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (3)
Treatment name(s)

(Wellbutrin XL)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) fatigue (1)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
3
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (3) anxious mood (1)

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (3 evaluations)
Side effects
difficulty sleeping when on full dose dry mouth at night 8 more
Total evaluations
3
Tried for
pain (4) psychogenic non-epileptic seizures (4)
1 more
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
apathy diarrhea 5 more
Total evaluations
11
Tried for
depressed mood (7) anxious mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
drowsiness apathy 4 more
Total evaluations
5
Tried for
anxious mood (5)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (4) depressed mood (1)
Treatment name(s)

(Cannabidiol/Tetrahydrocannabinol Balanced Mixture)
Perceived effectiveness
for pain (4 evaluations)
Side effects
cognitive confusion constant hunger 6 more
Total evaluations
5
Tried for
pain (3) psychogenic non-epileptic seizures (3)
2 more
Treatment name(s)

(Lyrica)
Perceived effectiveness
for pain (3 evaluations)
Side effects
dry mouth vomiting
Total evaluations
3
Tried for
pain (4)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (3)
Treatment name(s)

(Wellbutrin XL)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
anger anxious mood 8 more
Total evaluations
2
Tried for
depressed mood (3) fatigue (1)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
abdominal pain
Total evaluations
4
Tried for
anxious mood (2) depressed mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
No evaluations
Side effects
Total evaluations
1
Tried for
depressed mood (3) anxious mood (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Who has psychogenic non-epileptic seizures on PatientsLikeMe?


Age
Age Proportion # of patients
<20 10
20s 68
30s 103
40s 154
50s 120
60s 47
70+ 10
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 60
20-29 years 54
30-39 years 65
40-49 years 48
50-59 years 11
60-69 years 2
70+ years 4

Sex

Distribution of sex

80% Female
20% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 277
Not Diagnosed 56

These charts show data from psychogenic non-epileptic seizures patients who have completed their condition history
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