Psychogenic non-epileptic seizures

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What is psychogenic non-epileptic seizures?

Psychogenic non-epileptic seizures are events resembling an epileptic seizure, but without the characteristic electrical discharges associated with epilepsy. Instead, PNES are psychological in origin.

Common symptoms reported by people with psychogenic non-epileptic seizures

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
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Treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
8
Treatment name(s)

(Zoloft)
Type
Prescription Drug
How many have tried
8
Tried for
depressed mood (8) anxious mood (1)
Treatment name(s)

(Celexa)
Type
Prescription Drug
How many have tried
5
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
5
Tried for
anxious mood (5)
Treatment name(s)

(Ibuprofen Prescription)
Type
Over the Counter Drug
How many have tried
5
Tried for
pain (5)
Treatment name(s)

(BuSpar)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Ativan)
Type
Prescription Drug
How many have tried
4
Tried for
anxious mood (3) depressed mood (1)
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
4
Tried for
depressed mood (4) pain (1)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
3
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
3
Tried for
depressed mood (2) pain (2)

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with psychogenic non-epileptic seizures

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Neurontin)
Perceived effectiveness
for pain (4 evaluations)
Side effects
difficulty sleeping when on full dose dry mouth at night 8 more
Total evaluations
4
Treatment name(s)

(Zoloft)
Perceived effectiveness
for depressed mood (7 evaluations)
Side effects
apathy diarrhea 5 more
Total evaluations
12
Tried for
depressed mood (8) anxious mood (1)
Treatment name(s)

(Celexa)
Perceived effectiveness
for depressed mood (2 evaluations)
Side effects
insomnia
Total evaluations
3
Tried for
depressed mood (5) anxious mood (1)
Treatment name(s)

(Klonopin)
Perceived effectiveness
for anxious mood (5 evaluations)
Side effects
apathy confusion 4 more
Total evaluations
8
Tried for
anxious mood (5)
Treatment name(s)

(Ibuprofen Prescription)
Perceived effectiveness
for pain (5 evaluations)
Side effects
gastrointestinal bleeding indigestion
Total evaluations
5
Tried for
pain (5)
Treatment name(s)

(BuSpar)
Perceived effectiveness
for anxious mood (2 evaluations)
Side effects
abdominal pain
Total evaluations
4
Tried for
anxious mood (2) depressed mood (2)
Treatment name(s)

(Ativan)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
2
Tried for
anxious mood (3) depressed mood (1)
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for depressed mood (4 evaluations)
Side effects
increased energy insomnia
Total evaluations
4
Tried for
depressed mood (4) pain (1)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for depressed mood (1 evaluation)
Side effects
lack of motivation
Total evaluations
1
Tried for
depressed mood (2) pain (2)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with psychogenic non-epileptic seizures, who reported starting treatments within the last 5 years.
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Who has psychogenic non-epileptic seizures on PatientsLikeMe?


Age
Age Proportion # of patients
<20 19
20s 74
30s 109
40s 201
50s 150
60s 68
70+ 17
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 66
20-29 years 60
30-39 years 69
40-49 years 56
50-59 years 14
60-69 years 2
70+ years 4

Distribution of sex

Sex
Sex Proportion # of patients
Male 122
Female 515

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 368
Not Diagnosed 55

These charts show data from psychogenic non-epileptic seizures patients who have completed their condition history
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