Breast cancer

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as member Garth explains in this video.

What is breast cancer?

Breast cancer forms in tissues of the breast, usually the ducts (tubes that carry milk to the nipple) and lobules (glands that make milk). It occurs in both men and women, although male breast cancer is rare.

Common symptoms reported by people with breast cancer

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with breast cancer

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)
Type
Prescription Drug
How many have tried
96
Tried for
breast cancer (96)
Treatment name(s)

(Bilateral mastectomy)
Type
Surgery
How many have tried
68
Tried for
breast cancer (68)
Treatment name(s)

(Intensity-Modulated Radiation)
Type
Procedures
How many have tried
58
Tried for
breast cancer (58)
Treatment name(s)
Type
Surgery
How many have tried
57
Tried for
breast cancer (57)
Type
Surgery
How many have tried
39
Tried for
breast cancer (39)
Treatment name(s)

(Nolvadex)
Type
Prescription Drug
How many have tried
34
Tried for
breast cancer (34)
Treatment name(s)
Type
Surgery
How many have tried
30
Tried for
breast cancer (30)
Treatment name(s)

(Arimidex)
Type
Prescription Drug
How many have tried
28
Tried for
breast cancer (28)
Treatment name(s)

(Femara)
Type
Prescription Drug
How many have tried
16
Tried for
breast cancer (16)
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
10
Tried for
Pain (9) breast cancer (1)

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with breast cancer

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)
Perceived effectiveness
for breast cancer (58 evaluations)
Side effects
Fatigue Hair loss 69 more
Total evaluations
58
Tried for
breast cancer (96)
Treatment name(s)

(Bilateral mastectomy)
Perceived effectiveness
for breast cancer (21 evaluations)
Side effects
Hospitalization Pain 14 more
Total evaluations
22
Tried for
breast cancer (68)
Treatment name(s)

(Intensity-Modulated Radiation)
Perceived effectiveness
for breast cancer (22 evaluations)
Side effects
Fatigue Radiation burn 23 more
Total evaluations
22
Tried for
breast cancer (58)
Treatment name(s)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
Hospitalization Breast soreness 16 more
Total evaluations
17
Tried for
breast cancer (57)
Perceived effectiveness
for breast cancer (10 evaluations)
Side effects
Limited range of motion Numbness 10 more
Total evaluations
10
Tried for
breast cancer (39)
Treatment name(s)

(Nolvadex)
Perceived effectiveness
for breast cancer (15 evaluations)
Side effects
Hot flashes Excessive sweating 29 more
Total evaluations
18
Tried for
breast cancer (34)
Treatment name(s)
Perceived effectiveness
for breast cancer (11 evaluations)
Side effects
Pain Hospitalization 11 more
Total evaluations
11
Tried for
breast cancer (30)
Treatment name(s)

(Arimidex)
Perceived effectiveness
for breast cancer (18 evaluations)
Side effects
Hot flashes Joint pain 14 more
Total evaluations
19
Tried for
breast cancer (28)
Treatment name(s)

(Femara)
Perceived effectiveness
for breast cancer (9 evaluations)
Side effects
Hot flashes Joint pain 9 more
Total evaluations
9
Tried for
breast cancer (16)
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (2 evaluations)
Side effects
Constipation
Total evaluations
2
Tried for
Pain (9) breast cancer (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with breast cancer, who reported starting treatments within the last 5 years.
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Who has breast cancer on PatientsLikeMe?


Age
Age Proportion # of patients
<20 1
20s 69
30s 257
40s 867
50s 1,571
60s 1,228
70+ 342
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 5
20-29 years 38
30-39 years 92
40-49 years 176
50-59 years 144
60-69 years 58
70+ years 8

Sex

Distribution of sex

97% Female
3% Male

Types
Condition Types Proportion # of patients
Angiosarcoma of the breast 43
Ductal carcinoma in situ (DCIS) 1,064
Inflammatory breast cancer (IBC) 115
Invasive ductal carcinoma (IDC) 1,495
Invasive lobular carcinoma (ILC) 327
Lobular carcinoma in situ (LCIS) 107
Paget's disease of the nipple 22
Phyllodes tumor of the breast 20
Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 3,600
Not Diagnosed 118

These charts show data from breast cancer patients who have completed their condition history
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