Peripheral Neuropathy

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Peripheral Neuropathy?

Your peripheral nerves are the ones outside your brain and spinal cord. Symptoms of peripheral neuropathy often start gradually, and then get worse. They include numbness, pain, burning or tingling, muscle weakness, and sensitivity to touch.

Common symptoms reported by people with Peripheral Neuropathy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
Last updated:

Treatments taken by people with Peripheral Neuropathy

You’ve tried
Treatment name(s)
Type
How many have tried
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Type
Prescription Drug
How many have tried
141
Tried for
Peripheral Neuropathy (131) Pain (22)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Type
Prescription Drug
How many have tried
53
Tried for
Peripheral Neuropathy (42) Insomnia (15)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Type
Prescription Drug
How many have tried
39
Tried for
Depressed mood (19) Peripheral Neuropathy (19)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Lidocaine Viscous)
Type
Prescription Drug
How many have tried
34
Tried for
Peripheral Neuropathy (34)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Type
Prescription Drug
How many have tried
34
Tried for
Pain (19) Peripheral Neuropathy (18)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Type
Prescription Drug
How many have tried
32
Tried for
Pain (31) Peripheral Neuropathy (2)
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Type
Prescription Drug
How many have tried
26
Tried for
Pain (25) Peripheral Neuropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
17
Tried for
Anxious mood (15) Insomnia (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Type
Prescription Drug
How many have tried
14
Tried for
Insomnia (13) Peripheral Neuropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Type
Prescription Drug
How many have tried
14
Tried for
Depressed mood (11) Peripheral Neuropathy (4)
1 more

Data from patients with Peripheral Neuropathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

Compare treatments taken by people with Peripheral Neuropathy

You’ve tried
Treatment name(s)
Perceived effectiveness
Side effects
How many evaluations
Tried for
Check to add this treatment to your profile
Treatment name(s)

(Neurontin)
Perceived effectiveness
for Peripheral Neuropathy (48 evaluations)
Side effects
Dizziness Excessive daytime sleepiness (somnolence) 38 more
How many evaluations
61
Tried for
Peripheral Neuropathy (131) Pain (22)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Elavil)
Perceived effectiveness
for Peripheral Neuropathy (25 evaluations)
Side effects
Dry mouth Drowsiness 17 more
How many evaluations
38
Tried for
Peripheral Neuropathy (42) Insomnia (15)
2 more
Check to add this treatment to your profile
Treatment name(s)

(Cymbalta)
Perceived effectiveness
for Depressed mood (20 evaluations)
Side effects
Nausea Excessive daytime sleepiness (somnolence) 22 more
How many evaluations
37
Tried for
Depressed mood (19) Peripheral Neuropathy (19)
3 more
Check to add this treatment to your profile
Treatment name(s)

(Lidocaine Viscous)
Perceived effectiveness
for Peripheral Neuropathy (14 evaluations)
Side effects
Burn
How many evaluations
15
Tried for
Peripheral Neuropathy (34)
Check to add this treatment to your profile
Treatment name(s)

(Lyrica)
Perceived effectiveness
for Pain (15 evaluations)
Side effects
Dizziness Drowsiness 21 more
How many evaluations
24
Tried for
Pain (19) Peripheral Neuropathy (18)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Ultram)
Perceived effectiveness
for Pain (21 evaluations)
Side effects
Dizziness Nausea 11 more
How many evaluations
26
Tried for
Pain (31) Peripheral Neuropathy (2)
Check to add this treatment to your profile
Treatment name(s)

(Norco)
Perceived effectiveness
for Pain (14 evaluations)
Side effects
Drowsiness Dizziness with nausea 7 more
How many evaluations
16
Tried for
Pain (25) Peripheral Neuropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Klonopin)
Perceived effectiveness
for Anxious mood (9 evaluations)
Side effects
Drowsiness Dizziness 5 more
How many evaluations
10
Tried for
Anxious mood (15) Insomnia (1)
1 more
Check to add this treatment to your profile
Treatment name(s)

(Desyrel)
Perceived effectiveness
for Insomnia (3 evaluations)
Side effects
Excessive sleeping (hypersomnia)
How many evaluations
3
Tried for
Insomnia (13) Peripheral Neuropathy (1)
Check to add this treatment to your profile
Treatment name(s)

(Effexor XR)
Perceived effectiveness
for Depressed mood (2 evaluations)
Side effects
Dry mouth Excessive yawning 1 more
How many evaluations
4
Tried for
Depressed mood (11) Peripheral Neuropathy (4)
1 more

Data from patients with Peripheral Neuropathy, who reported starting treatments within the last 5 years.
Last updated:
You’ve tried this treatment.

  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Who has Peripheral Neuropathy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 2
20s 58
30s 195
40s 536
50s 1,009
60s 1,053
70+ 680

Sex

Distribution of sex

69% Female
31% Male
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 50
20-29 years 147
30-39 years 352
40-49 years 503
50-59 years 456
60-69 years 185
70+ years 45

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 2,015
Not Diagnosed 125

These charts show data from Peripheral Neuropathy patients who have completed their condition history
Last updated: