Progressive muscular atrophy

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What is progressive muscular atrophy?

Progressive muscular atrophy is one of a group of disorders marked by progressive degeneration of motor neurons in the spinal cord resulting in weakness and muscular atrophy, usually without evidence of injury to the corticospinal tracts.

Common symptoms reported by people with progressive muscular atrophy

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, insomnia, fatigue, and pain) regardless of condition.
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Treatments taken by people with progressive muscular atrophy

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Rilutek)
Type
Prescription Drug
How many have tried
12
Treatment name(s)

(Plus CBD Oil)
Type
Over the Counter Drug
How many have tried
2
Treatment name(s)

(Klonopin)
Type
Prescription Drug
How many have tried
2
Tried for
anxious mood (2)
Treatment name(s)

(Zanaflex)
Type
Prescription Drug
How many have tried
2
Tried for
stiffness/spasticity (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Type
Prescription Drug
How many have tried
1
Treatment name(s)
Type
Complementary and Alternative Medicine
How many have tried
1
Tried for
constipation (1)
Treatment name(s)

(Lexotanil)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Marijuana)
Type
Other
How many have tried
1
Tried for
pain (1)
Treatment name(s)

(Sinemet)
Type
Prescription Drug
How many have tried
1
Tried for
stiffness/spasticity (1)

Data from patients with progressive muscular atrophy, who reported starting treatments within the last 5 years.
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Compare treatments taken by people with progressive muscular atrophy

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Rilutek)
Perceived effectiveness
for progressive muscular atrophy (6 evaluations)
Side effects
bitter taste bowel problems 5 more
Total evaluations
11
Treatment name(s)

(Plus CBD Oil)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Treatment name(s)

(Klonopin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (2)
Treatment name(s)

(Zanaflex)
Perceived effectiveness
for stiffness/spasticity (1 evaluation)
Side effects
drug interactions
Total evaluations
1
Tried for
stiffness/spasticity (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
tiredness
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Mylan-Baclofen)
Perceived effectiveness
for progressive muscular atrophy (5 evaluations)
Side effects
Total evaluations
5
Treatment name(s)
Perceived effectiveness
for constipation (1 evaluation)
Side effects
Total evaluations
1
Tried for
constipation (1)
Treatment name(s)

(Lexotanil)
Perceived effectiveness
for anxious mood (1 evaluation)
Side effects
Total evaluations
1
Tried for
anxious mood (1)
Treatment name(s)

(Marijuana)
Perceived effectiveness
for pain (1 evaluation)
Side effects
Total evaluations
1
Tried for
pain (1)
Treatment name(s)

(Sinemet)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
stiffness/spasticity (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with progressive muscular atrophy, who reported starting treatments within the last 5 years.
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Who has progressive muscular atrophy on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 8
30s 21
40s 38
50s 60
60s 79
70+ 60
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 7
20-29 years 13
30-39 years 18
40-49 years 35
50-59 years 39
60-69 years 31
70+ years 13

Sex

Distribution of sex

36% Female
64% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 164
Not Diagnosed 35

These charts show data from PMA patients who have completed their condition history
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