Behcet's disease

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is Behcet's disease?

Behcet's disease is a rare disease that causes inflammation in the body's blood vessels. This may result in painful mouth ulcers, genital ulcers, eye problems and skin lesions.

Common symptoms reported by people with Behcet's disease

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with Behcet's disease

Treatment name(s)
Type
How many have tried
Tried for
Treatment name(s)

(Imuran)
Type
Prescription Drug
How many have tried
5
Tried for
Behcet's disease (5)
Treatment name(s)

(Humira)
Type
Prescription Drug
How many have tried
3
Tried for
Behcet's disease (3)
Treatment name(s)

(Colcrys)
Type
Prescription Drug
How many have tried
3
Tried for
Behcet's disease (3)
Treatment name(s)

(Remicade)
Type
Prescription Drug
How many have tried
3
Tried for
Behcet's disease (3)
Treatment name(s)

(Plaquenil)
Type
Prescription Drug
How many have tried
2
Tried for
Behcet's disease (2)
Treatment name(s)

(Deltasone)
Type
Prescription Drug
How many have tried
2
Tried for
Behcet's disease (2)
Treatment name(s)

(Salazopyrin)
Type
Prescription Drug
How many have tried
2
Tried for
Behcet's disease (2)
Treatment name(s)

(Xanax)
Type
Prescription Drug
How many have tried
1
Tried for
anxious mood (1)
Treatment name(s)

(Otezla)
Type
Prescription Drug
How many have tried
1
Tried for
Behcet's disease (1)
Treatment name(s)

(Celebrex)
Type
Prescription Drug
How many have tried
1
Tried for
pain (1)

Data from patients with Behcet's disease, who reported starting treatments within the last 5 years.
Last updated:

Compare treatments taken by people with Behcet's disease

Treatment name(s)
Perceived effectiveness
Side effects
Total evaluations
Tried for
Treatment name(s)

(Imuran)
Perceived effectiveness
for Behcet's disease (2 evaluations)
Side effects
pancreatitis
Total evaluations
2
Tried for
Behcet's disease (5)
Treatment name(s)

(Humira)
Perceived effectiveness
for Behcet's disease (2 evaluations)
Side effects
back pain butterfly (malar) rash 7 more
Total evaluations
2
Tried for
Behcet's disease (3)
Treatment name(s)

(Colcrys)
Perceived effectiveness
for Behcet's disease (1 evaluation)
Side effects
diarrhea
Total evaluations
1
Tried for
Behcet's disease (3)
Treatment name(s)

(Remicade)
Perceived effectiveness
for Behcet's disease (2 evaluations)
Side effects
allergic reaction
Total evaluations
2
Tried for
Behcet's disease (3)
Treatment name(s)

(Plaquenil)
Perceived effectiveness
for Behcet's disease (2 evaluations)
Side effects
digestive problems
Total evaluations
2
Tried for
Behcet's disease (2)
Treatment name(s)

(Deltasone)
Perceived effectiveness
for Behcet's disease (1 evaluation)
Side effects
weight gain
Total evaluations
1
Tried for
Behcet's disease (2)
Treatment name(s)

(Salazopyrin)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Behcet's disease (2)
Treatment name(s)

(Xanax)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
anxious mood (1)
Treatment name(s)

(Otezla)
Perceived effectiveness
No evaluations
Side effects
No evaluations
Total evaluations
0
Tried for
Behcet's disease (1)
Treatment name(s)

(Celebrex)
Perceived effectiveness
for pain (1 evaluation)
Side effects
nausea
Total evaluations
1
Tried for
pain (1)
  • Major
  • Moderate
  • Slight
  • None
  • Can't tell
  • Severe
  • Moderate
  • Mild
  • None

Data from patients with Behcet's disease, who reported starting treatments within the last 5 years.
Last updated:

Who has Behcet's disease on PatientsLikeMe?


Age
Age Proportion # of patients
<20 7
20s 27
30s 48
40s 48
50s 32
60s 18
70+ 4
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 45
20-29 years 27
30-39 years 15
40-49 years 5
50-59 years 2
60-69 years 0
70+ years 0

Distribution of sex

Sex
Sex Proportion # of patients
Male 29
Female 157

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 104
Not Diagnosed 10

These charts show data from Behcet's disease patients who have completed their condition history
Last updated: