Indolent systemic mastocytosis

We’re all in this for good.

By sharing your stories and data, you will:
  • help each other live better and uncover the best ways to manage your health today
  • help researchers shorten the path to new treatments tomorrow

How much good can your data do? A whole lot, as co-founder Jamie Heywood explains in this video.

What is indolent systemic mastocytosis?

Indolent systemic mastocytosis is the presence of too many mast (mastocytes) cells in the bone marrow and skin. Mast cells are a part of the body's immune system and help to regulate allergic reactions.

Common symptoms reported by people with indolent systemic mastocytosis

Common symptoms
How bad it is
What people are taking for it

Reports may be affected by other conditions and/or medication side effects. We ask about general symptoms (anxious mood, depressed mood, fatigue, pain, and stress) regardless of condition.
Last updated:

Treatments taken by people with indolent systemic mastocytosis

No data

Let’s build this page together! When you share what it’s like to have indolent systemic mastocytosis through your profile, those stories and data appear here too.

Got a question about living with indolent systemic mastocytosis? Members in the forum might have the answers.

Compare treatments taken by people with indolent systemic mastocytosis

No data

Let’s build this page together! When you share what it’s like to have indolent systemic mastocytosis through your profile, those stories and data appear here too.

Got a question about living with indolent systemic mastocytosis? Members in the forum might have the answers.

Who has indolent systemic mastocytosis on PatientsLikeMe?


Age
Age Proportion # of patients
<20 0
20s 2
30s 6
40s 5
50s 4
60s 3
70+ 2
Age at first symptom
Age at first symptom Proportion # of patients
0-19 years 3
20-29 years 2
30-39 years 1
40-49 years 1
50-59 years 2
60-69 years 0
70+ years 0

Sex

Distribution of sex

86% Female
14% Male

Diagnosis status
Diagnosis status Proportion # of patients
Diagnosed 9
Not Diagnosed 1

These charts show data from indolent systemic mastocytosis patients who have completed their condition history
Last updated: